Today has been ok here, Kennedy's mouth is really bothering her. She's definitely in pain and keeps chewing on her hands and whining. We can't SEE any sores in there, but they may be in her throat. We are doing mouth care several times a day with some solution the nurses mixed up for us. Hopefully it will help keep them under control. They also gave her Lortab for the pain which seemed to help some. Besides that, we discovered a rash on her tummy tonight then when I went to change her dressing over her line I found horrible sores under there! We're using the ONLY tape we've found that doesn't tear her skin off so I don't know what we can try now. I gave her a bath and cleaned the site and reapplied a dressing trying to avoid putting the tape on the sores. The doctor on call came up to look at it and I asked about just leaving the dressing off completely but she said with her history of lines falling out that wouldn't be safe. *sigh* The actual spot where the line goes in is kind of red and I see a little bit of puss under there... the doctor said she would culture it if it gets worse. PRAY it's not infected! Tomorrow at 8am Kennedy has a swallow study downstairs. We are hoping her aspiration issues are getting better. How cool would that be if we could stop thickening her liquids?! I'm assuming we'll know the results right away so I'll update again then. Keeghan is being referred to GI for his reflux so hopefully they can help him. We'll find out tomorrow when that appointment is. OK I guess that's IT for us! LOL Please remember Cody Myers' family in your prayers. Jamie, Angela and Ben are on a trip in Florida. We pray they are relaxing and enjoying time with Ben. I am thankful for the care packages and cards we receive from friends, they always make us smile! :o)
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Welcome to my blog where I take on day to day life with my five amazing children: Kassidy, Kameron, Kennedy, Keeghan & Kellsey, and a husband in the Military. Join us as we face issues with Down syndrome, Leukemia, Deployments, and every day life with 5 young kids! You'll be in for the ride of your life!
My name is Renee, I am 34 years old, I am married to the Army... oh wait I mean I'm married to a Soldier, my hero. Same thing right? I am a misplaced Californian who lives in Colorado by way of Tennessee. I am a mini-van driving soccer mom... I always knew I would be! I am blessed to be able to stay home with my 5 amazing kids. Kassidy: my beautiful, too smart for her own good, funny, dramatic 13 year old who is starting her teen years with grace. Kameron: My high strung, smart, artistic, creative, silly, sometimes mysterious 11 year old who loves musical theater and acting. My 8 year old diva, Kennedy: who will most often be found dancing or dreaming of Justin Bieber. She's destined for the stars! Keeghan: my crazy, funny, silly, handsome 5 year old monkey who loves to ask me a million questions all day long; and our 6 year old Ukrainian Princess Kellsey who is finding her way in the world as she battles Reactive Attachment Disorder. Our goal for her is to make sure she knows she is always loved, wherever that may take her... I'm so incredibly blessed.