Mouth sores and rashes...

Today has been ok here, Kennedy's mouth is really bothering her. She's definitely in pain and keeps chewing on her hands and whining. We can't SEE any sores in there, but they may be in her throat. We are doing mouth care several times a day with some solution the nurses mixed up for us. Hopefully it will help keep them under control. They also gave her Lortab for the pain which seemed to help some. 

Besides that, we discovered a rash on her tummy tonight then when I went to change her dressing over her line I found horrible sores under there! We're using the ONLY tape we've found that doesn't tear her skin off so I don't know what we can try now. I gave her a bath and cleaned the site and reapplied a dressing trying to avoid putting the tape on the sores. The doctor on call came up to look at it and I asked about just leaving the dressing off completely but she said with her history of lines falling out that wouldn't be safe. *sigh* The actual spot where the line goes in is kind of red and I see a little bit of puss under there... the doctor said she would culture it if it gets worse. PRAY it's not infected!

Tomorrow at 8am Kennedy has a swallow study downstairs. We are hoping her aspiration issues are getting better. How cool would that be if we could stop thickening her liquids?! I'm assuming we'll know the results right away so I'll update again then. 

Keeghan is being referred to GI for his reflux so hopefully they can help him. We'll find out tomorrow when that appointment is. 

OK I guess that's IT for us! LOL

Please remember Cody Myers' family in your prayers. Jamie, Angela and Ben are on a trip in Florida. We pray they are relaxing and enjoying time with Ben. 

I am thankful for the care packages and cards we receive from friends, they always make us smile! :o)