OK so here we go again... all of you Kennedy Prayer Warriors out there, we need you!
While I have YET to actually talk to a surgeon, we're making headway. The doctor in PA said that the gap between the vertebrae in Kennedy's neck is huge. Normal range would be around 4.5mm and Kennedy's is 13mm. NOT good. Like I said, I haven't gotten a chance to talk to him yet, I was really hoping he would call me tonight so I could ask questions...
In the meantime I called back Dr. Summar from the Down syndrome clinic and she got in touch with Dr. Pearson, the neurosurgeon at Vanderbilt, and he finally looked at Kennedy's CT and I immediately got a call from his scheduler. We have to be at Vandy tomorrow at 11am for a sedated MRI at noon and then we will go immediately to Dr. Pearson's office to talk to him about surgery.
I still don't know much at this point... I promise that for every one of your questions, I have 10 more! haha As long as they don't cancel school due to snow tomorrow, my mom will be coming with me to help with Keeghan and be my second set of ears. If they do cancel school then my mom will stay with Kass and Kam, and a friend will go with me to Vandy.
So tomorrow night I'll probably flood you all with information... probably more than you ever wanted to know about spines and vertebrae! haha
Kennedy has sailed through 17 surgeries, lots of different diagnoses, and beat cancer in her 3 1/2 years of life... she's not going to let spine surgery get her down! One more scar = one more badge of courage. She's the strongest kid I've ever met!
Pray for... I don't know right now... just pray. God knows what needs to be done and He's already shown His hand in all this. I'm a bundle of nerves tonight but I look forward to getting some answers tomorrow... oh and if anyone wants to help me make signs for that orthopedic surgeon we saw in the ER last week, I plan on bombarding him with them! HA!