OK so here we go again... all of you Kennedy Prayer Warriors out there, we need you!
While I have YET to actually talk to a surgeon, we're making headway. The doctor in PA said that the gap between the vertebrae in Kennedy's neck is huge. Normal range would be around 4.5mm and Kennedy's is 13mm. NOT good. Like I said, I haven't gotten a chance to talk to him yet, I was really hoping he would call me tonight so I could ask questions...
In the meantime I called back Dr. Summar from the Down syndrome clinic and she got in touch with Dr. Pearson, the neurosurgeon at Vanderbilt, and he finally looked at Kennedy's CT and I immediately got a call from his scheduler. We have to be at Vandy tomorrow at 11am for a sedated MRI at noon and then we will go immediately to Dr. Pearson's office to talk to him about surgery.
I still don't know much at this point... I promise that for every one of your questions, I have 10 more! haha As long as they don't cancel school due to snow tomorrow, my mom will be coming with me to help with Keeghan and be my second set of ears. If they do cancel school then my mom will stay with Kass and Kam, and a friend will go with me to Vandy.
So tomorrow night I'll probably flood you all with information... probably more than you ever wanted to know about spines and vertebrae! haha
Kennedy has sailed through 17 surgeries, lots of different diagnoses, and beat cancer in her 3 1/2 years of life... she's not going to let spine surgery get her down! One more scar = one more badge of courage. She's the strongest kid I've ever met!
Pray for... I don't know right now... just pray. God knows what needs to be done and He's already shown His hand in all this. I'm a bundle of nerves tonight but I look forward to getting some answers tomorrow... oh and if anyone wants to help me make signs for that orthopedic surgeon we saw in the ER last week, I plan on bombarding him with them! HA!
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18 comments:
Definitely praying. I'll be thinking of you all day tomorrow as well.
I'll definately be praying for miss kennedy tonight before bed! I have faith everything will be ok and they can fix it.
I'm not even sure a sign will help some people! Duh!! I'm proud to call our family part 0f Kennedy's prayer warriors! We pray for her and your whole family each morning in our family devotions.
Praying for some good news, peace and whatever else you need! I hope tomorrow goes well. Kennedy is such a brave little girl. I hope she gets through all this very soon. Hang in there mom. I'm praying for you, too.
Renee, Ray and I will be praying for Kennedy. Thank goodness for that quiet sound booth that led you to investigate her neck clicking. God is watching out for her in this already.
--Kim
When you think about all that Kennedy has gone through... it's hard to believe she's only 3! My 3 year old boy is only a couple of weeks older than her, I can't help but imagine him in her place and what that leads me to is... I don't know how YOU do it mom, LOL. You just do, though, right? Doesn't it drive you crazy when people say (like they have to me) "oh, you're JUST a mom?" Anyway, many many prayers going up from the A-Team to all the Special Ks. Thank God the problem was identified before something worse happened.
She is an amazing little girl and you are an amazingly strong mama! You are in my prayers.
I will be a prayer warrior for you. I am so sad that Kennedy has to go through all this! She is a brave and wonderful little girl.
I'll say a prayer right now! We had a 2 hour snow delay here and I think we got the bottom of this little snow storm so I am willing to bet mom got to go with you. I can't wait to hear how it went!
I thought you said "medical curd" as in "lemon curd" and puzzled myself for a moment there...
I sincerely hope all works itself out soon! Take care
;->...
G
xx
You and Kennedy are both incredibly amazing. My fingers and toes are crossed for you guys.
Thought I had already posted a comment. Read the carepage this morning!! Am thinking and praying for you guys!!!!
Beth
Oh goodness, we'll be praying! You guys are so amazing for your fortitude and courage and trust. I'm glad to know you. :)
Oh Renee, we are praying for you! I will be checking back tomorrow for an update.
Your in my prayers!!!
Praying here! Waiting for your update because of course I can't get on Downsyn!! GRR
Praying!!!!
I will say a prayer for you and your family tonight!
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