Finally getting somewhere

Today was a crazy day... it started out with Shriners saying they STILL didn't have the records from Vanderbilt, so I called Vandy and they said all 240 pages (and remember that's only a fraction of her records) was mailed last Thursday. Turns out they forgot to put the "Attention to" on there to get it to the right person. So I called Shriners back, they located the records and anesthesia went over ALL 240 pages in about half an hour. Really?! WOW they must be speed readers! What a waste of time. So anesthesia called me and said she was cleared for surgery from their standpoint and the only thing they need now is a note from hemonc saying she is cleared from their side too. Of course right now hemonc can't clear her... 

So then I get a call from hemonc who said that anesthesia doesn't want to sedate her for the bone marrow biopsy. So they wanted to wait a few weeks and see if the fevers stop or if her counts get better or worse and then approach the situation again... BUT that means we can't set a surgery date with Shriners. Also, she ran a 101.7 temp ALL night last night that even Motrin wouldn't help. SO then it was suggested that they do her bone marrow biopsy while Kennedy is awake. Uh... let me think about that. NO! So she asked if I could have Shriners fax the records from her MRI and CT done at CHOP to the anesthesiologists at Vandy. I think her records have changed hands so many times in the last couple months that she should break some kind of record somewhere! haha 

So Shriners faxed the records and a few hours later we got a call from Vandy and she's good to go for a sedated bone marrow biopsy tomorrow.The head of anesthesia will be in there with her the whole time, which is a good thing. We have to be there at noon and her biopsy is at 1:30. I'm assuming we won't know the results until Monday. 

THEN just for kicks I got another call from Vandy about getting Kameron evaluated at the food clinic. They told me the first available appointment is June 10th. I think she was expecting me to be upset about that but I was so worn out I just said, "OK whatever!" haha OH and we have an appointment on May 20th in Cincinnati for Kennedy with GI. Here's hoping they can help her with this diarrhea! 

So pray pray pray for everything to go well tomorrow and for good results from the biopsy! 

I am thankful for things falling into place... finally!