Special K Update

Hi everyone,

I am going to get back to my reflections on last year soon, but I wanted to update on now first...

Kennedy and Kameron went to the developmental ped on Wednesday. They see him every few months. With Kennedy my biggest issue (still) is her constant diarrhea. The GI at Vandy is just not helping. She has yet to actually SEE Kennedy in her clinic in the last 7 months that she has had this diarrhea. She has yet to culture her stools. When I call she just switches her to a new medication blindly. This week when I called she told us to try Citrucel... which if she had even bothered to look at Kennedy's file she would have known we tried that 2 months ago. UGH!

SO the developmental ped wanted to send us to LeBohner Hospital in Memphis to see a GI there. That is where all the kids from St. Jude go so if this IS related to her chemo, they would be the best ones to help. However we found out today that LeBohner won't accept TriCare insurance. *sigh* So now they're looking at sending her to Cincinati. We'll hear more about that next week.

As far as Shriners goes, they should get her medical records sometime this week and hopefully the anesthesiologist will look at them right away and decide if he needs to do his own testing or not. I'm thinking he is going to say he does need to and we will have to fly up there for that. Maybe not though, we'll see.

So back to the developmental ped appointment. He is going to send Kameron to a food program at Vanderbilt. Kameron eats less than 10 foods... most of these foods are NOT good for him. He won't eat ONE veggie... he'll eat a couple fruits, but only if they look exactly right... for example a banana's peel has to be completely yellow with NO brown spots on it. Do you know how hard that is to find?! LOL He ends up eating peanut butter and jelly sandwiches OFTEN for dinner because he refuses to eat what the rest of us eat. I've tried saying, "You will eat what we eat or you won't eat at all" and he goes to bed hungry and then wakes up and immediately throws up. SO he HAS to eat dinner... I think part of it is that he knows he has the upper hand... part of it is sensory issues. The food program is going to help him overcome both of these things (we pray!). I'm not sure on a time frame for this yet, but hopefully soon!

Other than that, Kam is doing well. He had to get blood work done which he was SO upset about but he handled it well :). He's a brave boy! I let him stay home from school the rest of the day so we could hang out. :)

On Thursday Kassidy stayed home sick. She threw up right before school, just one time. No fever, no other symptoms. She just laid around all day and didn't do much. By last night she was feeling much better and went back to school today.

Today Keeghan started in with a cough which got worse and worse as the day wore on. By 4:00 he had a 102 fever. So I took him into evening clinic and he has strep! Poor kid! Their ped said that if Kassidy starts not feeling well again to bring her in to get tested as well. We'll see!

PLEASE keep praying for Cody Robinson, (cp: CodyLee). Kennedy and I are going to visit him tomorrow. We look forward to giving him a hug.

Keep all 4 of my Special Ks in your prayers! They mean more than you know! The contest ended today for the Military Motherhood Award. As soon as I hear results I will let you know. Thanks to everyone who voted! 

I am thankful for my kids and for my mom who helps me keep it all together while Frank is gone!