Kennedy had her pre-op appointment at Shriner's this morning and I think we're all set to go. They're a little concerned about her diarrhea, but since it's been going on for almost 9 months, and the fact that the Flagyl DID stop it when she was taking it, they're going to go ahead with surgery. Thank God! I do need to call her GI in Cincinnati though about getting her more Flagyl.
Because of her history of aspiration and slow gastric motility, Kennedy will be taking Reglan for the next 2 days and we will be thickening her liquids for awhile after surgery to ensure she does not aspirate. It wouldn't be good to get pneumonia right now!!
They did some blood work today, which she was a champ for, of course! They took an x-ray of her neck and tomorrow sometime they are going to do a CT of her head. They've done a few CTs of her neck but he wants to do one of her head to ensure that there are no blockages where they want to put the pins for the Halo.
I'm still not sure what time her surgery will be on Wednesday, but I'll let you know as I know!
I have gotten several emails from people asking for an address to send things to Kennedy. Here is the address for the hotel, then Frank or my mom can get the stuff to the hospital to her.
Renee Garcia
C/O Holiday Inn
Historic District
400 Arch Street Room 736
Philadelphia, PA 19106
OK we are off to take the kids to see Wall-E. Pictures coming soon, I promise!
Monday, June 30, 2008
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8 comments:
We are thinking and praying that all goes well for Kennedy tomorrow!!!! I was just posting on my blog about her surgery tomorrow- I hope you don't mind!!!!
Enjoy the movie - can't wait for pics!
Glad pre-op went well. Hope you are enjoying your time with Frank! Praying for Wednesday!
Thanks for the comment you left on my blog! I will be praying for your baby during your hospital stay! You have such a beautiful family!
Blessings and prayers sent your way!
Brenda
Thinking of Kennedy!!!
Just wishing Kennedy the best of luck. And lots of hugs to you!!
good luck for the surgery, hugs for Kennedy, shall be praying for her on this side of the world!
I really wish there was something other than Reglan that they could use.... Reglan is notorious for causing seizures. Kids with DS are at higher risk as it is. Even if it was a rare side effect...with Kennedy's history "rare" means nothing except it's more likely to happen.
Good luck I hope that all goes well.
Praying for Kennedy and for all of you to have strength to get through this difficult time. Your children are truly blessed to have such a wonderful and caring mother. I love reading your blog for inspiration in my own mothering journey.
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