Kennedy had an ok night, she was pretty restless, but her nurse and I both really think she was just thirsty. Between the two of us swabbing her mouth, and a little extra morphine and a dose of valium, we kept her comfortable. A few times when she woke up she reached to the back of her head. The doctors said she could be having muscle spasms back there.
Miss Kennedy managed to use her tongue to get her nasal cannula off a few times last night, but she is breathing ok on her own now anyway so they removed it this morning. Her lips are all chapped from the licking, so we're treating that now.
She still has her drain in her head and hip... both are draining out blood, but not a whole lot, which is good. They said she may get out of the ICU this afternoon and go to a regular room. All the rooms there are shared so PLEASE pray that either they won't have many patients and we'll get our own room OR that we'll get a really quiet family next to us! Some of the rooms have four beds in them! I think Vanderbilt has definitely spoiled us in this regard. :)
So, I'm pretty sure everyone here thinks I'm overreacting about the Tegaderm. They keep telling me they've never seen a reaction like what I am talking about. SO thanks to my trusty journaling I was able to pull up a picture of what it did to her last time... they were shocked, but they believe me now. That'll teach them! Fortunately, we got it off Kennedy's face fast enough last night that I think she'll be ok... her IV sites will be a different issue.
That's all for now, Kennedy is sleeping peacefully right now... they said later they're going to let her drink and have her sit up... not really looking forward to the sitting up part! I will take pictures, of course!
Thursday, July 3, 2008
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Thoughts and prayers continue with little Miss Kenndey today. ((HUGS))
AWW So sad Kennedy has to go through so much. Hopefully her skin won't be too terrible this time. I hope they have at least learned and next time in informed Mommy tells then not to do something they will listen. UGH Sending many hugs Renee and prayers too!!
Thanks for the updates!!!! It is awesome we can all keep up with how you are all doing, especially Kennedy!!! Thoughts and prayers!!!
I am praying for Kennedy & a safe quick recovery.
Poor baby. I will continue to pray for her!
I just get the eeber geebers thinking about that halo. To not be able to move without going in one full motion, ugh. Poor sweet girl. :( Once healed, she be as good as new, right? How long do they think she is going to need pain meds?
I do not know you all, as I came upon your blog through another, but want you to know that I am praying for Miss Kennedy and your family. What a precious child! I will continue to follow your journey in prayer!
Sincerely,
Cindi Ellison
Knoxville, TN
ABSees123s@aol.com
I'm a Kindergarten teacher in Knoxville, TN
Renee. My daughter started using tegaderm last week with some new treatment she is having. After 12 hours of it on we had to change it. I thought the redness was due to it being removed. The second one stayed on a few days and when we removed it, it ripped her skin and has blistered. We are letting it heal and then trying a tape instead.
Best wishes for Kennedy and your whole family. And we don't mind if you update heaps, we like to know whats going on.
Vicky Farrow
I don't think you are overreacting at all about the tape. I think it's awful that they aren't listening to you and taking it seriously. That kind of stuff makes me fume!
I'm glad the night was ok for her, and I hope that she continues to progress, and become more comfortable. I also hope you get a peaceful room.
Still praying for you!
Prayers as always! Thanks for the update!
O my goodness...I was shocked to hear of this news! You are about an hour from us! How I would love to meet you and see your precious angel! Thanks for all the detailed updates...praying for your family....Steph Nolt (Ashton's mommy)
Yay for a new day! Yesterday is done and all went well now you can concentrate on Kennedy's recovery! Still prayin!
Glad to hear everything is going ok. I will be praying for no roomies or only one, I can't imagine 3!! Thanks for all of the updates, I've been checking often. Take care and try and get some rest for yourself!! Liz
Renee, I am so glad that she is doing so well. I hope that today is a great day and that Kennedy starts feeling like herself. We are praying for NO ROOMIES! Y'all need and deserve a private room. I will be checking in often to see how the princess is doing.
Hopefully you'll get a room alone, but you never know, you could meet new friends! Glad the tape didn't do too much to her poor little face. How long will she have to have the halo?
Update away, we keep checking in, and I'm sure it helps to write...
Glad Kennedy is on the road to recovery now. I'm sure you will be glad to be out of the PICU. I'm glad they believe you about the tegaderm. Pictures can be so helpful! My daughter Katherine also want to say to Kennedy "Get well soon!"
The kids and I are praying for Kennedy and your entire family!
Love from Cincinnati!
I have been checking in to see the updates, glad everything seems to be going well. Sorry to hear they weren't really listening at first but at least you did get their attention with the pictures. I'll be thinking of you!
I stumbled across your blog. You have a beautiful family. My family and I are wishing you all the best. Good luck to Kennedy. Much love & hugs from California - Sara, David & Adam.
Good for you for having those pictures and the presence of mind to show them just what you are talking about. Perhaps you should have those pictures placed on top of her pre op notes before any surgery. Although, hopefully she's done with surgery. Hopefully it doesn't cause too much of a problem where the IV's are. Sounds like she's recovering nicely. Oh yeah and what's with the sharing a room thing? That's going to be crazy. Maybe you'll luck out and get to stay on your own.
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