Wednesday, July 2, 2008

Kennedy - Post Op Update


Here is Kennedy in her halo. She is in quite a bit of pain right now. They have morphine ordered, but it's not here yet :(. She is asking for water, which she's not allowed to have until tomorrow, but they've let us swab her mouth with a little bit of water so her throat is not so dry.

She is really a mess right now... she has marker all over her and over 25 needle sticks covering her arms and legs where they tried to get IVs in. She has an IV in one arm and one foot, a catheter, a drain from the back of her head and from her hip where they took the bone. Both drains are slowly filling with blood... she did not need a transfusion during surgery which is a good thing!

The halo has 8 pins... 4 in the front and 4 in the back... the biggest problem?! We came in to find her COVERED in techaderm even though I told them REPEATEDLY that it tears her skin off. We've had this issue at Vandy before too. I don't get it. They put it in writing, I saw them! I'm trying VERY hard to not freak out, but I just don't understand. Her cheeks are already blistering under the foam tape that is now holding her nasal cannula in... hopefully we got it off fast enough so her skin will stay in tact and not become infected. She also had techaderm on her thighs and it's over both IVs... they won't remove it from the IVs so I am going to have to ask for a consult with wound care so we can counteract the damage it's doing. It really just makes me want to scream.

Anyway, she is floating in and out of sleep right now... when she's awake, she's crying, so hopefully the pain meds will get here soon!

That's all for now, I'll update again when anything changes.

52 comments :

Stephanie said...

oh man, my heart is aching for her right now. I wish I could take away her pain, poor baby!

Laurie said...

Oh Sweet Kennedy! I am praying that the pain meds get there quickly and that her pain is taken care of quickly. Praying for quick healing! I can't believe that they didn't pay attention to their notes! Poor Kennedy has to suffer even more for their lack of attention. Like she's not in enough pain from the surgery alone. Continued prayers as always for Kennedy and your family.

The Bechtholds said...

I am really sorry you have to deal with all the "extra" stuff that you shouldn't be having to deal with! You and your precious little girl are in my prayers.

Sharliss Jane Arnold said...

We are so happy our sweet Kennedy is out and doing good. We will continue to pray for her pain level and of course the huge Boo Boo the staff made with the techaderm. Thank you for keeping us updated. It does my heart good to know this is done.

Love and Blessings

Sharliss & Katherine Arnold

Pam said...

Been thinking of you guys and checking in all day. I am so glad everything went well.

Praying that the morphine kicks in and she is out of pain. She looks really good in the picture, especially after all she has been through today.

Thank you so much for keeping us all updated. We are thinking of you and praying always.

Give her a kiss from Rhett.

Lisa & Gerald said...

Hope Kennedy's feels better soon! thank you for sharing how shes doing
Always thinking of you guys
Hugs & kisses going your way!

Steph, Asher's mom said...

We had similar issues with the tegaderm....I can totally understand your frustration....I'm sorry


I feel so sad the pain med wasn't ready for her!

Thinking of you

waldenhouse said...

My heart feels so heavy for her right now. I cannot imagine how confusing all of this is to her.

The tape thing is maddening! What more can you do than warn them over and over? We will pray for her tender skin and her pain as she wakes.

Anonymous said...

I'm praying for Kennedy and your whole family!

Maria from Ohio

Me said...

My heart just breaks that she has to go through all this. I can't beleive the mess-up with the tape issue, and her having to wait for pain meds just baffles me. Did they not think she'd be in any pain after the surgery??????

But as someone above said, she looks really good. Has she really noticed the halo? You mentioned she was messing with her O2 mask, I would think she would be really P-O'd about the halo. I know I would be!

mom2natnkatncj said...

OMG, how are you holding up Renee? You must be freaking out. I'm in tears just seeing her and hearing that they have no pain medication for her and they are causing her more trauma by doing something you specifically told them not to do. That's so upsetting. Hopefully it doesn't hurt her too much and hopefully that morphine gets there like yesterday. You'd think they would have been prepared with those pain meds ahead of time. At least the surgery itself went as planned though. Now we're pulling for a speedy and hopefully as pain free as possible recovery.

Kathy said...

Renee, I just don't get it. I can't help but ask WHY? And nobody will tell me. I'm sorry, I wanted to post a really upbeat "Thank God she came out of the surgery good." I just can't. It's not fair. I want to rant and scream at the injustice. What has she ever done to have to go thru SO much in her short little life.

Joy said...

So glad to hear that she is out of surgery safely! Sorry to hear about the tape! Poor baby! Still praying for a quick recovery!

Anonymous said...

I think Kennedy looks prety good in the picture, but I am freaking out for you about the tape! I know all we can do is pray, but it breaks my heart for her and you.
I love you both and will keep praying!
Thanks for all the updates.
Love, hugs, kisses, and prayers,
Debra Covington

The Balsis Family said...

Ohh poor baby girl! My heart is breaking right now! I would be fuming about the techaderm too! I hope she gets some pain relief soon ... and please dear God, can this be the last of her hurdles! She deserves a break!!

somebody's mama said...

Oh my, why didn't they listen about the tape. Poor girl. Poor mama. How awful.

I hope she is able to get some pain meds soon.

hugs to all!

Jeri said...

Poor Kennedy. She is a real trooper. She deserves anything that she asks for. I would be a nervous wreck right now. I'm sorry that she is in such pain. I will continue to pray for her and you as well.

Cynthia said...

I'm so glad that Kennedy has a wonderful mama to speak up for her and make sure they make things right for her. I can't believe they won't change the techaderm when it is so obviously hurting her already.
So glad you know who to ask for help with this (wound care) and really hope this can be taken care of before it does serious damage. I have never had any luck with getting someone to understand about reacting to the medical tape etc they use ( my whole family has this issue!). Why?!!!

Jennifer said...

I've tried to sign in soo many times and finally!!! We're praying out here like crazy for your little one. Hoping she gets some pain meds soon.
Thanks for sharing your journey with us.....

LaForestGump said...

I've been checking in all day, and so glad to hear it's over and she's ok. I'm sorry about the tape, is she allergic, or is the tape that strong? I'll continue to be thinking about your fam and hoping that your baby girl heals perfectly.
Stacy

Kristen said...

Hi Renee. I have been following all day even though I haven't had a chance to comment until now. Hopefully, you were able to "enjoy" some of your time with Frank while Kenn was in surgery. I didn't realize it was going to take so long for some reason. My hat is off to you and Frank!!!

Ok, now about the tape. Grrr, grrr, and more grrrr!!! That is SO NOT ACCEPTABLE. How about you find out what they are allergic to and make them go inject themselves with it?!?!? That makes me so mad! Kennedy has been through enough for crying out loud! She has a flippin' HALO! She doesn't need to fight infection due to negligence.

Prayers continue for all of you and especially your sweet cincess.

~Melissa~ said...

I'm so glad to come home and see that she is through the surgery. I'm so sorry though that you are having to deal with the tape issue all over again - and most importantly that she's in pain. I hope she gets some relief soon, and you all continue to be in my prayers.

Rita Andrews said...

oH RENEE
I have been posting your updates on our blog for all our reader, friends and family to pray for sweet Kennedy...Please know she and your whole family are in the prayers of many~

Many Hugs your way!

Rita
RR

Damselfly said...

Aw, I hope that pain will go away! It must be hard for a little person to be in a halo, not fully understanding why. My stepmother was in a halo for a while, and I know it's hard. Praying for your family....

Coming to you from Banana Migraine.

Anonymous said...

Oh my goodness. I knew she would look awful, but this has made me cry. Poor little girl.

I sure hope her skin isnt getting too bad. Carly has the same exact problem with that stuff. Her's made her look as if someone held a hot iron on each side of her face. Needless to say, I was livid and flipped out on the nurses at 4am...then called the docs in. I dont understand why they DONT LISTEN TO MOM. GRRRRR!

Praying for you to feel much better Kennedy.

Hugs,
Joany and Carly

Mom of Army Brats. said...

While i love the blog, i hope you NEVER have to update this much on kennedy again!!!

AllisonWonderland said...

I am still praying for your little girl.. I thought about her all day! I hope the pain goes away quickly!!!

Cammie Heflin said...

I'm so glad things went well, except for the tape thing. We have had the same problem with Addy, very frustrating. I have prayed all day for this angel. Take care.

Tiffany said...

I've been praying for sweet Kennedy all day and checking on her. Thanks for the twitter updates - they were great. I can't believe that about the tegaderm! You must be so frustrated. We'll keep praying but I'm thankful she's out of the OR.

Tiffany said...

I've been praying for sweet Kennedy all day and checking on her. Thanks for the twitter updates - they were great. I can't believe that about the tegaderm! You must be so frustrated. We'll keep praying but I'm thankful she's out of the OR.

Steph, Asher's mom said...

I just can't imagine....how confused Kennedy must be. Poor baby.... I feel so bad....

Praying for her....may Jesus wrap His arms around her and comfort her (and her whole family)!

Hugs!

Julie said...

Hope your sweet girl has gotten some pain relief. Don't know what those people are thinking with that Tegaderm! Does she not have enough worries? More prayers for Kenn's recovery - hugs to you guys.

Carey said...

oh renee, that picture makes me so sad. so unfair, i just want to scream. she's so innocent. i can just imagine last night and this morning, she was clueless i'm sure as to what they were going to do to her. she looked as happy as can be in the pre op pix, and now, she wakes up and is hurting so badly. i'm sure you're hurting right along with her.

i am happy however that frank is with you, and your mom. stay strong, it will get better. you know what a tough girl little kennedy is, she'll get through this. thinking and praying for you and our sweet little kennedy!
Carey & Chelsea

Mary Lynn said...

Kennedy looks so much like Sierra to me and I check in on all of you every day. I pray she feels better soon. It breaks my heart all she has to go through but she is definately a fighter.

God bless all of you,

Mary Lynn
Proud momma of Sierra
www.caringbridge.org/visit/sierrakesler

Becca said...

Oh, poor little baby! I'm so sorry to hear she's in pain and that the techaderm is making things worse. I'll be thinking about her, and Samantha sends kisses for her boo boos.

TheAngelForever said...

Oh Renee, I am so sorry about the instructions not being followed. Hopefully they will fix that soon and she will not suffer from their screw up.

My eyes have tears in them seeing your little angel. She is such a tough cookie and has been through so much. I know she will do well - she has to with a great mommy like you. Hopefully the meds arrive soon to keep her pain away and allow her to sleep through the rough time.

Take care of yourself. I am so glad that you had internet. I have a feeling it helped you to make it through those hours of waiting with hair on your head.

Hugs and prayers coming your way.

Laura said...

Man that must be hard to see your baby like that. We are praying, for her to recover quickly, the pain to subside, and that you all can be together as a family again soon. May Gods hand remain on each of you. I hope you all get some rest.

Lisa Turner said...

What a fighter! My heart goes out to sweet Miss Kennedy. I can't believe they didn't listen to you about the tape.....ugh! I hope it doesn't cause too many issues. Still praying......for the meds to ease her pain and for her skin to be okay from that darn tape. Praying for you, Frank, Jackie and ALL of your speckial K's.
Hugs,
Lisa, Tom, Elijah and Mara

lesliemarie said...

madness! i hate that no one paid attention to her allergies...it shocks me how often that happens! i hope she has plenty of pain meds by now and is resting well. and i hope mom and dad are a little settled down too! for the record, that is about the most colorful halo i've ever seen...all of the adult ones are boring and gray. i think kennedy will like this one much better. :)

Tara Marie said...

Oh sweet little girl.......keeping you close in positive thoughts and prayers.

Shari said...

I don't have internet right now. I came to the library to check on her. I have tears. I am sure it was shocking for you to see her that way, too. I pray the pain is eased quickly with the meds. Take care and I will check back when I can. I am praying for you all. Hang in there. Love you, Shari

Michelle said...

I'm so glad the surgery is complete! How awful about the techaderm, though. I hope they can fix it and soon. You're in our thoughts, all of you!

Ashley's Attic said...

Oh Renee! All my prayers are with y'all tonight.

Mary said...

Oh, sweet child. My heart aches for her...and your family. Sending positive thoughts and prayers your way.

Laurie said...

Oh, sweet baby. We've been praying all day for you and Kennedy. I'm so very glad she is resting well tonight.

This Mama's Hood said...

I am so sorry for the mess up with the techaderm. As I read your post I began to cry. My heart just breaks for her and I just pray that they are able to fix any damage that has been done. Kennedy is such a strong little girl and a true inspiration. Your whole family is.

This Mama's Hood said...

I am so sorry for the mess up with the techaderm. As I read your post I began to cry. My heart just breaks for her and I just pray that they are able to fix any damage that has been done. Kennedy is such a strong little girl and a true inspiration. Your whole family is.

Beth said...

That picture brought tears to my eyes!! Poor Kennedy. Know that prayers are still headed your way!!!!!!!

FickleZeal Photography said...

I'm in tears here. Precious Kennedy. I hope that everything goes as smooth as possible.

I will keep her in my prayers and thoughts.

I've missed you guys. I'll try to keep up.

I love the new look and feel of your blog. Not sure when you did it.. but it looks great.

Oh, I'm publishing from my biz.. this is Jenna, Lana's mom.

Amy said...

Adding my prayers to every one else's.

PS, I am a friend of Laurie. http://fornevinssake.blogspot.com/

Kelli said...

that makes me so mad. I have told them so many times different issues for Kyler, which they dont follow which only means even more that you cant leave them for one minute to tend to your self or your family because they will do some kind of damage. I hope and pray her poor little soft skin doesnt blister or very little. Miricles can happen with so many people praying.

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