Wednesday, July 16, 2008

Q&A #14

I thought the bruises were from poking her while starting the IV etc. What are her counts like? Are they concerned about the leukemia/bruising situation? Her counts are totally recovered right?
Well they took counts on Monday and I STILL don't know what they are... but I'm guessing they're fine or they would have called. Her counts were totally recovered at last check, but any unexplained bruise makes me nervous... probably always will!

Why did you take her (Kennedy) down to the lobby to wash her hair? Just for a change of scenery or was it just easier to do in the lobby bathroom?
Yeah we need a lot of counter space so we could lay her flat and lay her head over the sink... We'll be doing it again soon so I will take pics. Trust me the change of scenery from here to the lobby bathroom is NOT exciting! haha

Oh no he (Keeghan) didn't stick his finger in his mouth after that (picked the horse's nose) did he?
I hope not! ;)

How's Kennedy handling everything? I assume she's probably in a wheel chair.
Yes she's in a wheel chair when we go out because the stroller is too narrow for her halo. She's doing fine though. She does get mad that we won't let her walk around the hotel room, but there are just too many tight corners and edges for her to bump into. We take her out into the hallway though and let her walk out there for a bit.

We seem to have the hardest time taking simple little day trips anywhere with my 3yr old grandson cause we always seem to arrive at naptime, or hes a bear cause he missed naptime, or we cant leave till after naptime and then its too late to bother.........how do you it with all your little ones? Everyone always looks HAPPY! :-)
Well, I don't usually take pictures when they're NOT happy, but I have to say, both Kennedy and Keeghan nap GREAT in the stroller (or wheelchair) which makes it easy to go places. The only thing that's hard at naptime is if they fall asleep in the car and we have to get them out. We try to avoid that.

Okay, Joe wants to know which place (for Cheese steaks) is the best?
We really like Geno's... weren't too impressed with Pat's and we really like Sonny's. We now have to try Jim's and Steaks on South. Yum!

Um, does the woman seated next to the young man (in the Shriner's picture) have her sunglasses on her fez?
Yes. Yes she does. I guess she had to express her individuality somehow! :)

Renee, please will you promise to give Kennedy a big kiss for me?
Sure will!!! She LOVES kisses! :)

I love your favorite one of Keeghan too. Where was that taken? (Picture of Keeghan in front of the bridge)
That was taken in front of the Ben Franklin bridge. I hate that bridge. haha

Is that the infamous blue bridge, lol?
Yes. Stupid bridge.

Is kass wearing a tube top in that last photo...It`s sooo cute!
It's actually a tank top from the Children's Place... came with matching capris. It is REALLY cute! I have better pics of her in it which I'll post later. :)

And I second the exclamation on the long wait to see the doctor. How on earth did you keep Kennedy occupied for all that time?
Fortunately she fell asleep for about 2 hours of the wait time. The rest of the time we read A LOT of books.

That carseat doesn't look very comfortable, don't they have a luxury version?
Haha! I don't think so! We were happy just to have one though! The other option was to have her rear facing. She would NOT have been happy about that.

Is she still on pain medication or is it just OTC stuff?
We've just been using Tylenol, but we have a prescription for Codiene if she needs it.

When does Frank leave?
Friday, July 25th. Same day that the rest of us leave.

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9 comments:

Kelli said...

great Q&A! hugs and prayers

Shari said...

Renee: I have been doing "driveby" reading due to my schedule of events. ha! Anyway, know that I am continuing to pray for you all daily. Also, I found a great website called www.5MinutesforSpecialNeeds.com. It's awesome. Check it out if you have a minute! Love ya!

Carey said...

hey there, love your q&a's they're so funny! I sent you an email tonight ... re: Kenn's counts. I'm such an over worried mama! thanks!
Carey

This Mama's Hood said...

Love all the updates and photos. I am glad that everything seems to be going good. I keep praying that it stays that way. Have fun this next week!!

Laura said...

Ok love the Q&A days! What an adventure this summer has been for you all. Praying daily for you, looking forward to our next get together! I'll email you later I've got a picture to send you :)

Beth said...

I love the Q&As!!!! Hope everyone is still doing well...

Beth

Anonymous said...

does Kass have her OWN iPOD?....Shes soo young!!!:)

Lesa said...

Renee, I love your blog and your babies are beautiful. I just saw in your questions and answers about the "cheesesteak". My hubby and I get to go to Phillly once a year and his first and last stop and sometimes several in between stops (hee hee) is to Campo's. It is at 214 Market St. It is almost over to the river. Their cheesesteak is to die for! While you are there, you gotta try their canoli. Enjoy!

Danielle said...

I know that seat is probably easier to unthread and rethread... however it has so little leg support. I just can't imagine that it's comfortable at all.

If she was only going to be in it for a few weeks, that'd be different. But I can not imagine my child tolerating that for 6 months.

If you get a chance, look at the Britax Regent. Kenn could use it for quite a while...then when she is done it could be passed onto Keeg.

It harnesses to 80lbs or, when they outgrow it by height. My daughter also has to have AAI/AOI surgery and after serious thought we've decided to use the Regent with the halo.

It is one of her regular seats anyway, but it's the one wide enough to accomodate the halo as well as still offer leg support. (Mine is picky about that though.)

Good luck, I'm glad that either way you guys put a lot of thought into keeping her safe in the car. I see so many kids leave the hospital just in the backseat with a halo... because it's just too difficult. So, good for you. :)