She did SOOOO well! She got a little weepy when they were taking the back pins out because those are the ones that were so painful to her anyway. We were able to distract her with a book though.
Now she is back in a neck brace and will wear it for several months. Her CT looked great! Dr. Samdani said that he already saw a lot of bone growth and he was very pleased. We have to come back to Philly in about 2 1/2 months.
Olivia, Megan and Kennedy last night at Stephanie's house
This morning before Kennedy's CT scan
Being silly
Dr. Samdani telling Kennedy he's going to take the halo off...
Taking off the side bars...
Here we go....
Bars are off! (Yes, I was crying!)
Happy to be almost free
FREEEEEEEEEEE... ok except for the neck brace!
On a more personal note, I wanted to say thank you to everyone out there who has supported us with prayer on this journey, and to all those who love Kennedy and our family. It's been so amazing to hear all the stories of people who have been touched by her life, and even more the people who have been in similar situations and have written to tell me how it's helped them just to read of another family going through the same things. I know I have gained a HUGE amount of my strength from following other families who have been there, done that with their children and I am so thankful I am able to pass that on to other families going down the same path. I am so blessed to be Kennedy's mother.
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72 comments:
Kennedy is one tough cookie. She was so brave. I bet she feels like the world has been lifted off of her shoulders. I hope she is on a road of complete healing. She has an amazing story. You and your entire family are truly blessed. Thanks for sharing with us.
that little girl of yours is so strong! she looks great!! i am glad it went well and its all over with!!
Oh my - I'm crying!!! She is such an amazing little girl!!!! She looks very happy to "just have to wear the neck brace"!!!!!!!
she looks great!!!! So glad it all went smoothly!! do you have to stay in Philly for a few days???? We continue to pray for her neck to stay stable with the brace!!!
Hi Renee,
I'm happy for you, such great news.
Kennedy is MY HEROE!!!
Renee YOU ARE VERY WELCOME, again THANK YOU SO MUCH for sharing
your loving family & life with us. It is my choice to visit & come back again & again. Your family is such a source of inspiration and wisdom for me, my family & friends.
Many Blessing to you ~
Kleidy
New York
Oh Renee, I have tears in my eyes just thinking about this. Thank goodness it is over and she is free from the halo. We all know she is an angel anyway ;) Safe travels back home.
Oh she looks so happy. So have you given her a bath yet? That's so great that she's already begun to heal. Sounds like the doctor was pleasantly surprised to see how much healing she's done already. Hopefully she will be okay from her on out in the neck brace. So when do you go back home?
It's hard to tell just how tiny she is when she is in pictures by herself, but the one with her and her doctor really showed what a little thing she is! I am so glad to hear she's healing so well already. I guess compared to the halo, the neck brace isn't so bad. I'll keep praying she stays safe and heals properly without the halo.
Dear Renee,
Because of Kennedy, your family and you I gain STRENGTH every day, seeing all you have overcome have touched my life deeply, inspiring me to always keep going, knowing that God is with us and everything will be fine.
I'm very grateful and REALLY appreciate all the effort you put into sharing your life with us. Thank you so much.
God Bless you ~
She is so amazingly strong! What a cutie! Now you can hold her and cuddle her and she can have a real bath!
I am so glad she has some bone growth already. YEAH!
I looked at the last picture and had the biggest grin on my face at the sight of Kennedy's happy smile.
She's such a beautiful little girl!
Continued prayers for her recovery & for perfect bone growth around the hardware. I know the next few months will be a bit anxious as you protect Kennedy's neck ~ I pray God will keep her safe & there aren't any accidents at all.
(((( hugs ))))
You have such a stong beautiful young lady, and an inspiration to a lot of people. Glad things are looking so good, and that you both are well. Will continue praying for you both for a safe trip home.
I'm glad to see that she was able to smile so soon after all of that! She looks so freaked out in that pic!
She is one tough cookie, that girl. (and her mama too)
I am so excited to see Kennedy without the halo , and will pray for her progress...
I didn't know where to post this. but this is something I wanted to share. Anyway, I'm not sure if you are familiar with the organization but currently the Jimmy Fund is having a radio telethon it ends tonight at midnight. As of right now they have raised over 3 million since yesterday morning, the money does go to the Dana-Farber Institute in Boston. I really just wanted to pass the word on, and thought this would be a great place to do it.
-Allison
p.s more information can be found at www.jimmyfund.org
I bet she likes having it off, glad everything went ok for her and you.
YAY! I was so happy to see her beautiful, smiling face in the last picture! I know this isn't the end of the journey and that she has some more recovering to do, but it's so exciting to see her progress. Just know that we pray for you guys and ask others to pray too. God bless, Renee.
Michelle, Robby, Keandre & Jasmyne
Oh yay! Yay yay yay! I am teary-eyed just reading this... the picture of Mom crying didn't help one bit! Doesn't she look great. Praying for safe travels for Kennedy on her journey.
I have to say... that first picture with the three girls... "if you're lookin' for trouble... you've come to the right place." LOL!
Heather
(momof4as...UGH BLOGGER)
Glad to hear things went well. It amazes me how Kennedy smiles through all of these things! We're praying her neck continues to heal as it should.
Bless you sweet Kennedy!!
Jenn and Brook
She is absolutely BEAUTIFUL and I am thrilled to hear of her progress! WOOHOO! You are an AMAZING mom!
I love all the photos! So glad to hear that the x-rays look good. I started to cry when I was scrolling through all the photos. You are a brave little girl Kennedy and you have an awesome Mama!
Yeah! Such a brave girl!
Hooray!!
Love-the-picture-of-her-with-"the-girls!"
So-glad-to-hear-there-is-already-bone-growth.Will-continue-praying-for-complete-healing.
What-are-the-neck-brace-rules?
That is the bravest little face I've ever seen. I'm sure she's thrilled to be rid of that halo and here's to smooth sailing in the rest of her recovery.
Renee,
I don't comment here often but I read just about every day. I am amazed by Kennedy! She looks so happy to be out of the halo. I am glad to hear that she is on the road to recovery. You and she are so strong and amazing!! You are all in my prayers all the time! I'm glad we got to visit in Philly and hopefully we'll get to meet up again sometime!
Allyson
Renee,
I don't comment here often but I read just about every day. I am amazed by Kennedy! She looks so happy to be out of the halo. I am glad to hear that she is on the road to recovery. You and she are so strong and amazing!! You are all in my prayers all the time! I'm glad we got to visit in Philly and hopefully we'll get to meet up again sometime!
Allyson
Oh Renee, I am so glad to see her out of that halo!
Hi Little Miss,
I am so happy that you have the halo off and can give mommy lots of cuddles. I am praying that all is well with your neck and the halo did its job. God bless you!!
Love,
Mary Lynn
www.butterflysnrainbows.blogspot.com
I've been thinking about Kennedy all day. What a relief to see her smiling face tonight. Are the wounds on her head really bad from the screws??
She's loose!!! And that is the biggest smile! :)
OK so Todd asked how Kennedy did today! ;) What great pictures Renee. Thank you for sharing your life stories with us all. Your an amazing person and have helped so many people with the knowledge you pass out instead of selfishly holding it in.
I can't believe how strong your little Kennedy is!! I felt like I had a knot in my stomach till I was able to come here and read the update. I'm so glad everything went well for Kennedy!!!
What an incredibly strong and brave girl Ms. Kennedy is!! I am so glad that everything went well, I cannot believe she wasn't sedated.
oh Renee! What a brave girl you've got there! I would have been a mess! Go Kennedy!!! *cheers*
:) :) :)
xoxoxoxox
Allie
She looks terrified when they were taking off the side bars. She has more strength than I would have.
What an amazing little girl you are Kennedy. You never cease to amaze those who have followed your incredibly brave journey.Good job little princess,keep it up!!!
What a brave girl! (and Mom:) She must be so happy to be free!!! Glad the report was so good and that your visit went so well.
Renee - I've been out of the loop since the end of July. I feel like I've missed so much. Look at Kennedy all free and happy, with band-aids instead of pins on her forehead! yAY! Praying that the neck brace serves just as well. You have such patience and tenacity.
I did read down a bit - to the blog about the movie. I don't blame you one bit. Continue to champion your children -you do a fantastic job!
What an amazing brave girl you are, Miss Kennedy! We are on vacation this week so I hadn't realized you were getting your halo off until my parents told me today. I had to check out the blog to see how everything went.....you are such a sincess!
Many hugs and lots of prayers,
Lisa, Tom, Elijah and Mara Turner
yea!! she's free. She looks sooo happy to be free. I hope the sores heal fast for your sweet angel.
She is just amazing. I love that last picture. I could just squeeze her.
Oh goodness Kennedy, what a wonderful day you had.
So glad for you because it eliviates your pain. So glad for all of us cuz we can clearly see your beautiful face again ;-)
Oh, YAY!!!
She looks soo relieved to have it off, in that last picture.
Love it. Be careful. And have fun! :-)
What a trooper! That kid (and you) are such an inspiration! I am so honored to 'know' you!
Kennedy looks amazing...continued prayers for Kennedy always!
~Leximama~
Kennedy is as beautiful as ever! She is just such an amazing young lady!!
Oh hi Megan and Livi! So cute! Renee, I would have been crying too! To think that my child would soon be doing something that I'd be too chicken to do to myself. She is so brave and such a hero. I'm glad she is free, and I hope there will be no more surgery!
Greetings from London-England,
WOW!!! Kennedy you are such a brave angel, GOD BLESS YOU BABY!!!!
Renee, so many lessons in your blog, I'm honored to always visit and very thankful to you for being so kind to share with all of us your amazing journey.
There is something about Kennedy, she is magical, she has the power to make a difference in my life, just to see her makes me happy!!!
You are TRULY BLESSED !!!.Many Thanks!!!
Que linda sonrisa!! me alegro que Kennedy este cada dia mejor....:)
Bendiciones para ti y tu familia!
May the happiness and joy fill your life from now on Sweet & Beautiful Kennedy!
Kennedy, what a beautiful, brave, amazing trooper, sweet angel you are, my awesome HERO :)
A fan in New York City.
Kennedy is one tough cookie. So glad everything went well with the removal.
Happy to hear such great news! Kennedy you have done so much, what a great teacher and beautiful girl you are!. God Bless you all!
Familia Cruz (Spain)
i am so proud of both of you! bone growth is incredibly fast on most young kids, and it sounds like kennedy will be no exception. i pray the neck brace will protect her perfectly, and pray for no more surgeries for kennedy!
FRREEEEEEEEEE What a sweet face!!!! She looks very very happy!!!!!!!
I am thrilled to hear of her progress, it amazes me how Kennedy smiles through all, she is absolutely BEAUTIFUL & you are an AMAZING mom! I'll keep you both in my prayers. Liz (Boston)
I'm sitting here eatting cake and praying you didn't have the "hole" pictures on here. She is quite the tropper, can believe you got that good of pictures afterwards!
wow. I'm such a doofus, I only saw the first few pics with the halo still on when you first posted. I came back just now wondering why no new posts yet. yes, I know how to scroll. LOL.
Praise God for Kennedy's freedom from the neck monster!
Little kennedy is so precious and beautiful with or without her halo! I'm so happy that things went well! She does look much more comfortable without her halo on...
Been praying for ya'll!
Brenda
Little kennedy is so precious and beautiful with or without her halo! I'm so happy that things went well! She does look much more comfortable without her halo on...
Been praying for ya'll!
Brenda
Little kennedy is so precious and beautiful with or without her halo! I'm so happy that things went well! She does look much more comfortable without her halo on...
Been praying for ya'll!
Brenda
Beautiful and strong as always!
Great news!!!, Bravo Kennedy :))
Renee you should write a book, it will sell very well, your life is an amazing adventure. All the best!!!
She's so beautiful!! I miss you guys and I cant believe how big the other KJs are getting!!
We deff need to get together soon, AmyMarie and I were talking about you guys today!
Hope you have a good flight home!
It's wonderful to see Kennedy without all that aparatus. :)
I'm sure she will be thrilled to be wearing her favorite clothing again, stuff that actually fits.
What size is Kennedy wearing?
She looks wonderful! So glad she is doing so well!
She looks sooo much more comfortable! Bless her heart for having to endure ;-) It is great to see that all went well! She is just such a trooper.
Blessings,
Carla
You and your family are such a blessing to all of us who read about your day-to-day lives. I'm completely in love with your family and feel like we're good friends...I can only imagine the friendship that might blossom once we MEET! As soon as Kennedy is up for traveling...y'all have to make a trip down to McMinnville...it just has to happen. I'll be praying that that day will come very soon.
My Sincess, you are so beautiful. And you just made me cry.
Cheche
Philippines
Oh how happy you must be. Lottle Kennedy is just beautiful. I cannot imagine the strength that you have to get your child through this. My family will keep you all in prayer.
LITTLE Kennedy. I am sorry I goofed on the spelling. I am still woozy myself.I feel very blessed that you would bother to visit my blog when you have so much going on in your life. Gracias!
I just can't imagine what that was like to watch them remove the pins from her head! It looks like she was such a trooper throughout the whole process, I'm glad the procedure went well and she is halo-free...now praying she continues to heal with the neck brace!
I am so behind on my blog reading. I am happy to see her smiling in the last picture, no visible halo, but I know she still has one! She is amazingly composed, isn't she? Such a sweetie.
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