Q&A #30

(I almost typed I'm glad Keeghan is CUTE. Well I'm sure you are too ha ha - that's what happens when there is not enough sleep or coffee...)
LOL Yes, definitely glad he's cute! :)

kit kats and almond joys and yes I do Renee,,,how about you??
Hmm I love the Sour Patch Kids, but I mostly just take the red ones... and sometimes the green! LOL I love gummy lifesavers too. Yum! And yes, I most definitely raid the kids halloween baskets! hahaha

Please stop by and say hi at our site!
Stacey, email me with your link and password again, please!

I read your twitter, about the nurse asking if Kennedy was a little bit Downs. I get those questions from nurses too. I even had a Doc., ask me "was she born with Down Syndrome"? Well, duh! She sure didnt catch it walking down the street. Actually, I dont think that's what he meant to say, but he didnt correct himself. Sometimes I am blown away by the stupid comments regarding Ds, that I get from people in the medical profession.
Yeah... when Kennedy was going through chemo my mom was talking to her neighbor who is a nurse and was telling her about Kennedy's Leukemia and said something to the effect of, "But she also has Down syndrome so her chances of beating it are supposed to be better..." Her neighbor said, "Oh. Well... was the Down syndrome caused by the Leukemia?" WHAT?! LOL

And what about the back of her head where the pins were? I know you said they were still giving you problems. Did the doctor give you any suggestions of what you can do?
No, I told him about the spot that still breaks open and he said "Oh really?" and moved on! LOL Not really his area, I guess!

Wouldn't that be nice to start weaning her off the neck brace ;)?
Yes! Most definitely!

sorry Keeghan is sick now. Same stomach thing the rest of you got?
I'm not sure... he never threw up but my mom said he was pretty miserable.

I'm a lurker around here, but I was just watching TLC, and there is a medical show about confusing medical disorders.. A woman had chronic diarrhea, could not find a cause.. Had a test done on her gallbladder, and it was her gallbladder producing too much bile into her intestines.. Well, that's the goofy version that I can relay to you.. She was put on some sort of medication, and it stopped.. I'm sure you have your plate full, but I saw this and thought of you.... Have the doctors checked her gallbladder as a cause?
Interesting! They haven't tested that as far as I know, but I will definitely ask her GI about it!

When will you find out the results of these tests?
Preliminary results show that everything is normal... so all that for NOTHING!

Does she still have the fever? Do they think it could re related to the test she had done on Tuesday? She seems to have such a high tolerance for pain so if she's complaining that much about it then you would think something is going on in there.
No fever today, I REALLY think it was the barium. The doctor said he wasn't sure but it was possible. Thank goodness the pain is gone!

Did the blood work rule out appendicitis? Just wondering as she had fever and tummy pain?
I would guess so. Her counts were all normal.

Is it another bladder infection?
That's what I was wondering, but they said her urine looked ok. They sent it off for cultures just to be sure.

Praying it's nothing major and she feels better soon and stays away from the H word (don't even want to mention it)!
OK it took me FOREVER to figure out what the H word was! LOL I read it and thought, "OK what is that?" And I thought and I thought and then about 3am I woke up and said "HOSPITAL! That's the H word!" LOL

I'm so glad to read that you went to Burger King for dinner. The blog-o-sphere leans so much toward healthy, home-cooked meals, but sometimes you just have to do the drive-thru! Glad I'm not the only one! :)
hahahaha if you ONLY knew. I will say we got the apple fries and milk for the drinks! LOL

BTW, I got your message on the carepage. That is so funny because I just told Tom that tonight....just not sure how?
Blogging is EASY!!! I will do a post all about it soon!

What were the tricks to get him to eat peas and carrots???
WELLLLLL OK so first the peas:
She gave him a few on a plate and also had a food that he liked on the plate (sliced turkey).
She always has a "spit cup" available so he knows that he has the option to spit anything out if he doesn't like it.
Then she gave him a toothpick and told him to stab one pea.
She had him smell the pea and then lick the pea and then she told him to put it in his mouth, chew it 3 times and then spit it out. He did.
The next one she told him to chew 5 times and spit it out.
The next one she told him to chew 10 times and then instead of spitting it out to eat a piece of the turkey. He did and swallowed the pea!
Then he stabbed 3 peas and ate them with turkey, and so on.
Basically she said the turkey was masking the flavor and the texture and counting the chewing makes him concentrate more on that than what he's actually eating. Having the cup there is just a comfort thing to know he has a way out if he tries something new.
The carrots he dipped in peanut butter, which he loves, and he ate them! (But I swear if I tried it a month ago he wouldn't have done it!)
Hope that helps some!!!

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