Q&A #39

I have been meaning to ask you though, why aren't your kids in order at the top of your blog?
I have NO idea! LOL I didn't do the design. I actually never even noticed! hahaha

I'm curious as to why TriCare didn't approve you for Shriners?
Because we didn't go through the process. Shriner's is free to the families so we didn't get a referral through TriCare. NOW Shriner's DID take all our insurance info so they may have gotten them to pay... I have no clue.

how do you find out these?
Through my site meter

And my Yahoo RSS feed is the pits. You've blogged like four times since it updated on my page. Is there a better feed than this?
I use Google Reader.

Looking forward to pictures of the play...there will be pictures RIGHT???
But of course!!! LOL

Is your appt. at Vandy today? If so, we'll be on the 9th floor at 2:00. Look for us! Praying for you guys!
It was, but at 10:30. We were long gone by 2:00. Maybe sometime our appointments will coordinate and we can do lunch after! That would be fun!

Sorry to disappoint Kass and Kam but I am praying for the exact opposite of snow in Clarksville. I am going to be driving through there on our way back across the country and I am hoping to see as little snow as possible.
Ummm and will you be STOPPING in Clarksville?! Let me know!!!

And man is she a teeny thing! Pierce weighs 26lbs, and he is tiny for his age (5% I think). Kaia would seem like a monster next to her. She is 41 lbs, and about 40" tall! She's in the 90th percentile for typical growth! LOL.
LOL I know! She's going to be the only Kindergartner in 2T clothing next Fall! LOL Kennedy is nowhere near even being ON the typical growth chart... she finally made it to the 5% on the Ds growth chart though! HA!

Just curious...You mentioned that she can't have Motrin while her neck is healing, why?
Her surgeon said that Motrin slows internal healing... not exactly sure why that is, but he said to use Tylenol until her neck is completely healed. I did send him an email though and explained the situation and he told me I could do one dose of Motrin if her temp gets above 103 again.

Is sleep apnea more common for kids with t21?
Yes, several of my friends kids with Down syndrome have sleep apnea and need their tonsils and adenoids removed. This usually helps a GREAT deal. We all know Kennedy doesn't like the word "usually" though! HA!

Thanks for sharing (The IEP Poem). I also would love to repost this on my new special needs business blog. Special Needs Business I'm sure a lot of members would appreciate it!
Feel free! I look forward to checking out your site!

This is off topic, but did Frank have a good Thanksgiving? Did Afghan turkey taste ok?
Yes, he did! He said the food was great... now granted this is after 11 months of HORRIBLE food, so it probably didn't take much to qualify as great! LOL He did say he got a turkey leg though! :) Thanks for asking!

So did you ever tell Kam what holiday is in June? It's Flag Day ;).
Yeah, I didn't think about that one! LOL I told him Father's Day.

How did I miss the Nov. 12th update and all of the pictures of the little sincess? These paintings/sketches are wonderful. Does Lu have a website?
I don't know! How DID you miss it?! LOL Lu DOES have a fabulous website! Go check her out! Poppies Blooming

Is Grandma back in town and able to come to your rescue?
She is now! So that means they'll get better, right?! LOL

Maybe Keeghan has asthma? Sounds like classic symptoms to me.
You know, we were thinking the same thing today! Is he not too young to get Asthma? He's 18 months...

When is Frank gonna get to come in?
SOON! He'll be here before we know it... though not by Christmas :(. But SOON!

We have the night clinic too isn't it wonderful. you are at Campbell right?
It is wonderful!! Yes, we are at Campbell, but we live off post and most definitely do not take our kids to the hospital there. Scary. LOL

Hi Renee, I never saw this post when you posted it, our pc was dead for the summer lol. I noticed it on your list of blog posts. I have to say, I'm shocked that the person would think it WASN'T showing at least some level of disrespect to people with developmental disabilities.
Your response is great though. Would you mind if I borrowed part of it?
I doubt the person who commented will see what I've written but for someone clearly trying to denigrate those who are offended by this they have seemingly misunderstood something quite simple.
But I'm not trying to insult them. I would just hope that they could consider this. Imagine the person you love most in the world. Then imagine a film coming out mocking them. It would hurt. You would want to do something to defend that person.
Now, imagine you DO defend them. Now, imagine someone coming along telling you that you have no reason to be offended. Saying things like 'it wasn't directed at them...'
What would you say?
You know I don't mind :). Borrow away! And you make a very good point!

This was another reply to the Starfish Poem, I thought I would post it here.
As someone who has adopted, I don't have a problem with people saying I "saved" my children. I know that I did. Had I not been in Ukraine on August 22 2007, Xander would have been put in a bus on the 26th and sent to Torez where his life expectancy was less than a year. My obedience to God's plan saved Xander's life in a very real way, I know that without a doubt.
In April of 2008, I was in an orphanage in Serbia...much better than the one in Ukraine, but still a place with no hope. Did we save Grifyn's life the day we took him out of that place...I know we did. He would have been allowed to stay there until he was 10 but then he too would have been sent to an institution...a forgotten child with no future. He was almost 5 when we brought him home...that, along with his gender and his diagnosis of Ds statistically meant he would probably never be adopted.
HOWEVER, what I always make sure to tell people is that yes, I know that by being obedient to God's plan we did in a sense save the lives of Xander and Grifyn. But more than that, my boys saved me. My life has been profoundly changed since the moment I first walked into that orphanage in Ukraine and every single day I am blessed again and again. Many days when everything seems to be going wrong or life gets overwhelming, it's one of my boys that offers a hug or giggles that pure laugh that comes from the soul and my spirit is rejuvenated. It's those moments that I remember that we all need saving....and I'm thankful I see Jesus every single day through the life and the spirit of my boys.

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