Q&A #104

You got some amazing pictures! Were you sitting really close?
Yes! We were on the floor, about 8 rows back! VERY good seats, and it helps to have a good camera, too! LOL

That looks like a lot of fun!! At least you know who each one of the Jonas Brothers are!!! I don't even know that, and I'm 17!! Shouldn't I be the one pointing each one out?? =]
LOL Kassidy schooled me (she likes Joe... FYI LOL). Kameron though was the one to give me all the dirt... which one's engaged, which one dated Miley Cyrus etc. He's up on all the celebrity gossip! HA!

My oldest (16) loves Jonas Brothers! She was mad (that she didn't get to go!) and excited all at the same time to see the pictures you posted. She is wondering if you wouldn't mind if she printed off one of the pictures of Nick....since after all that is who she will me marrying in the future (her words, not mine!). I'm glad you guys had a great time!
Tell her that I wouldn't mind at all, but umm, in exchange, can we come to the wedding?! ;)

I'm hoping Renee will let me post it too, will you Renee? It's oh so very heart opening, I love it!
Absolutely! Always feel free to post any of my "fun stuff" on your blogs! If I got them off another blog I always link back to them so you know where it came from, that particular one was sent to me via email from a friend in California! I'm glad you enjoyed it! :)

Oh and those pics you took are great!! I think we have the same camera (Canon Rebel Xti?) It's a pretty good little camera. :)
Yep! That's the one! I love that camera! Except for the flash... when I'm trying to take a ton of pics in a row, the flash sometimes goes "busy" and then it won't let me take pictures. REALLY frustrating! Hopefully for Christmas I'll get an external one and that will solve my problem! :)

legally you have the right to choose who you want to see. I don't care what their "office policy" is, I think state and federal law supersede that, don't you?
Well I DO think so, but so far it hasn't mattered much what I think. *sigh* Good to know it's law though!!! :)

Uhhh, your insurance covers Dr. M too I'm assuming? I mean it must they are in the same practice. So why would it even matter?
Oh yes, he takes our insurance... that's definitely not an issue.

UGHHHH!!! Is it possible no one is even talking to Dr. M and informing him of all this. Maybe they are just assuming he will not take Kennedy?
It's possible. I'm actually REALLY hoping this is the case!

Odd (to me) that Dr. A would recommend Miralax for K since Miralax is what Micah takes for constipation, not diarrhea (in fact, the first question they ask when Micah gets sick with diarrhea is whether I've stopped giving the Miralax while he's sick... seriously, people, do you think I'm stupid?).
WELL Dr. A's ongoing theory about this (which I argued until I was blue in the face forever) is that Kennedy was in fact constipated and she was so backed up that the diarrhea was coming out AROUND the blockage of constipation. Thus the Miralax to clear up the (unproven) constipation and therefore clear up the diarrhea. While I know that this CAN happen, Kennedy's tummy is, and always has been, soft. There was no hard ball of constipation in there anywhere. When she was a baby she had chronic constipation. She was on Miralax for it. Besides the tummy cramps she would get, I could always tell when she was constipated just by the hard lump in her tummy. (I too, am not stupid, imagine that! LOL) If she were REALLY worried about constipation bad enough to give her diarrhea to shoot out around it 12 times a day (which is how bad it was during her 9 month stint) you'd think she would have wanted to do an ultrasound, or at the VERY least see her in her office!! And we won't even TALK about the fact that she prescribed my child who didn't even weigh 20 pounds TWICE the adult dose. Seriously.

Have you though about taking her to a doctor who does complimentary medicines?
Also, I can no longer eat wheat or dairy without severe consequences, maybe this is an issue with Kennedy? The brush border is wiped out from chemo, often does not regenerate. I have been on digestive enzymes since chemo ended in 2003. Something to look into.
I've never heard of complimentary medicines... what is that? We have taken Kennedy off dairy for a couple months (during the 9 month stint) to see if it would help, but it didn't. I will ask about the wheat though, if we ever get to see a doctor.

Can I come to your town and help you with this. There is nothing I hate more than stupid people who try to control a situation that they have no business doing. Have you considered calling a local news station or paper? Call the governor of your state. I would call anyone who will listen.
I've thought about our news. We have a segment called "That's Messed Up" BUT I'm going to see what J (patient advocate) does first. She has helped me with things before and she's trying, so I don't want to step on her toes. If she goes as far as she can and they STILL won't budge, then I'll go outside the hospital for help if need be.