Tuesday, August 31, 2010

Pictures from California

Here are a few pictures from our trip... like I said, I didn't take many. My camera just doesn't seem to be attached to me lately. I need to work on that! ;)

Kennedy and her friend Skyelynn
(pic thanks to Skye's mom, Brenda... who happens to be one of my high school teachers... which makes her... older than me. *ahem*) :o)

Goofy girls!

One of the tables at my Bompie's memorial service

My Nonnie and a picture of my Bompie from when he was in the Navy

Nonnie and Kennedy

The memory board that my cousin Becky and I made for Bompie's service... we had a good time making it... spent a lot of time together, laughed a lot, cried a bit, and remembered a lot of good times! I miss them!!





This is the house where my brother and I grew up. The day after my Bompie's service, he and I drove out to see it. It looks EXACTLY the same as when we lived there. Crazy!!! Lots more memories there!


They say you can't go home again, but it was sure nice to see everyone, even if it was for a sad reason. My Bompie's service was really nice. A lot of people shared some really great stories about him. He was a wonderful man and will be missed a lot.

I wish I would have gotten pictures of Kennedy with my cousin's daughter, Kylie. They are the same age and had so much fun together! I just didn't think about it. Next time, I guess. Anyway, that's it. Not much to show through photos, but lots of good memories, and I guess that's what counts! :)

Monday, August 30, 2010

Home!

Sorry I haven't been around, our trip to California was FAST and jam packed. I had a lot of good family time and made a lot of good memories. I didn't take ALL that many pictures because my brain was just fried, but I will share the few I did take soon. For now I am going to unpack and try to organize myself. I came home to a very sick Kameron. He is throwing up and feeling yucky, so he'll be home with me tomorrow. Hopefully the rest of us won't get his bug. Anyway, that's it for tonight. Back to real life tomorrow!

Wednesday, August 25, 2010

People Who 'ARE'



By: Dave Hingsburger

It's in the press again. I search to find out the context of the word. I see debates all over the web, people bemoaning the 'politically correct' and the 'word police' and making ridiculous claims about having to ban the concept of a 'fire retardant'. Last I looked there's never been a protest about products that protect from fire. Last I looked there's only ever been protests about the use of a word that demeans a group of people.

No matter what the fearless defenders of freedom of speech say, there is a huge difference between a word to describe something that slows fire and someone who learns differently. There's a huge difference between a thing and a person - but, no, maybe not. After reading their diatribes regarding their freedom to spit out hurtful words, they may, really, not see people with disabilities as fully human with a human heart capable human hurt.

People mock the concept of respectful language regarding disability. People make odd arguments about the latest gaffe by ... no, I won't say her name here ... they say 'she was saying that of herself not anyone else' - um, so? The word she used was one referring, not to a commercial product, but to an oppressed minority. Yet the debate rages on and the fierceness of the attack by those who are proponents of the use of hate language are both hysterical and who often purposely miss the point. One wonders what's at stake - their personal liberty to hurt others?

It's time to recognize that the 'R' word is an attack against who people with with intellectual disabilities 'are', it is an attack against the group that they belong to. It is like other words that exist to slur an entire people, unacceptable. The fact that people do not see the seriousness of the word and the attack it represents is simply a result of the fact that they do not take the 'people' who wear that label seriously. The concerns of those with intellectual disabilities have always been diminished and trivialized. There is a sneaking suspicion that they 'don't understand, poor dears', that they 'miss the point, little lambs' so therefore their anger need not be feared as justified.

The people who 'ARE' what the 'R' word refers to have a long history.

They have been torn from families and cast into institutions.

They have been beaten, hosed down, over medicated, under nourished, sterilized, brutalized, victimized.

They have been held captive, have been enslaved, have had their being given over to the state.

They are the group in society most likely to be physically, sexually and financially abused.

They are the group least likely to see justice, experience fair play, receive accommodation or support within the justice system.

They are the group most likely to be bullied, most likely to be tyrannized, most likely to be the target of taunts.

They are the least likely to have their hurt taken seriously, physical hurt, emotional hurt, spiritual hurt.

They are most likely to be ignored when they speak of pain, have their words diminished by an assumption of diminished capacity.

They are the least likely to ever be seen as equal, as equivalent and entirely whole.

They are the victim of some of the most widespread and pervasive prejudices imaginable.

They are those that the Nazi's thought unworthy of life, they are those targeted by geneticists for non-existence, they need fear those who wear black hats and those who wear white coats.

They are educated only under protest, they are included as a concession rather than a right, they are neighbours only because petitions failed to keep them out.

They are kept from the leadership of their own movement, they are ignored by the media, their stories are told to glorify Gods that they do not worship.

That they are a 'people' is questioned even though they have a unique history, a unique voice, a unique perception of the world.

That they are a 'community' is questioned even though they have commonality, they have mutual goals, they have a collective vision of the future.

That they are have a legitimate place at the table is questioned simply because no one's ever offered a seat.

They are a people.

They ask for respect and receive pity.

They ask for fair play and are offered charity.

They ask for justice and wipe spittle off their face.

They ask to silence words that brutalize them and their concerns are trivialized.

They ask to walk safely through their communities and yet bullies go unpunished.

They ask to participate fully and they are denied access and accommodation and acceptance.

And this is NOW.

This is the people who have walked the land of the long corridor, who have waited at the frontier of our bias to finally be here, now. They have survived. They have come home. They have continued, silently and without fanfare, to take hold of freedom and live with dignity. They have given everything they have for what others take for granted. Their civil liberties are perceived as 'gifts' as 'tokens' and as 'charity'. Their rights are seen as privileges. Their movement is, as of yet, unacknowledged. They are a people recently emancipated, new citizens, who are tentatively discovering their voice.

It is a voice not yet heard.

It is a voice not yet respected.

It is a voice not yet understood.

But it is speaking.

And when it is finally heard. The world will change.

The 'R' word is an attack on a people who know discrimination. Tremble when you say it. Because those who should know better will be held accountable to those who know best.

Tuesday, August 24, 2010

Well Worth the Read

(Stolen from my friend Michelle's blog).

Paul Daugherty's 2009 Keynote Address at the Remarkable Families Symposium should be required reading for all who work with children who have special needs...including parents!

It's a great reminder to "Expect. Don't accept."

Mr Daugherty has a daughter with Down syndrome. Here are a few excerpts from his keynote address, but you really should read the whole thing.

People look, but they don't see. People, and I'm talking qualified professionals, people trained in special education, too often don't look at Jillian and see possibility. They look at a child with Down Syndrome. They don't see who she can be. They conjure a stereotype. It's easier that way.

We never say never. Never is not a word. It's a self-defeating state of mind.

We have to change the way people think before we can change the way they act. Altering perceptions is like breaking a stone with drops of water. It can be done, if you're willing to take the time.

And a reminder for parents:

All any of it required, at base, was a disbelief in limitations. She can't learn? No, you're not willing to let her try. As parents, we cannot let that go unchallenged, not ever. We owe our kids that much. Expect, don't accept.

Do not give in to those who would ignore their better natures, because it's easier to retain a stereotype than change it. Change requires work, but it's the only way we improve as human beings. When people resist change, protest. Scream real loud. Give 'em hell. Don't let them tell you what your kid can do. Expect, don't accept.

Monday, August 23, 2010

Q&A #156

I can't believe Kam actually allows that spider shirt in your house :)
I know, right?! LOL Ironically, that's Keeghan's most favorite shirt ever. He calls it his Itsy Bitsy Spider shirt. LOL

Last year about halfway through the year I had to write out a morning routine with times I expected it to be done by. I'm a little surprised you haven't done that. Anyways, it worked for a little while, but then we would forget.
Well, I actually HAD a chart for last year too, but it wasn't as specific and, like you, half way through the year we kind of stopped using it. This year, we will stick to it. Dang it. LOL Kass and Kam actually really seem to like it!

Do they get that dirty at school that they need a second shower :)
LOL No, that's why I put "If needed". Sometimes they shower at night and sometimes in the morning, depending on how busy we are and their mood. They asked me too what was going to happen to their rooms to get it messy between the time they go to bed and the time they wake up in the morning, but HEY, you'd be surprised! LOL

I love some of these back to school ideas & may use them if thats ok with u. Its just me and my 2 girls cause daddys always on the rd working.Im gonna have the whole day to myself and need to get organzied a lil but...
TY Renee... What types of suppers do u find easy to fix for the kids during the school yr so u r not standin in the kitchen for hrs.

Don't mind at all! We do a lot of Schwan's stuff. I am NOT a good cook... I hate to cook. I hate the time and mess it takes to cook. I don't buy meat from Schwan's because it's quite expensive, but I love some of their other meals. We do their Six Cheese Tortellini (then I just buy marinara sauce to go over it), and they just brought out a new cheese ravioli that the kids just tried and LOVED! We like their 5 cheese garlic bread, their chicken enchiladas, they have a great spinach and mushroom pasta which only Kennedy and Keeghan and I will eat. (Kass and Kam liked it until they figured out they were eating spinach, and Kellsey can't have it because of the tomato sauce) so that's become a lunch time food for us now! LOL We buy their chicken fries, their mini corn dogs, and a lot of their breakfast stuff. Their toaster waffles, mini pancakes, and apple french toast sticks are all really good... or so my kids say! We also love their veggies. They come in a ziplock bag and you pour out just the amount you need. Their corn is delicious and so sweet! My kids also love their peas and they have broccoli and cheese that's really good. Their asparagus is awesome too, but that's something I only buy when Frank is home. If you scroll back through my Q&As there are a lot of other Schwan's recommendations as well. With Frank gone, I find we do a lot of quick and easy kid friendly food. I'm sure that will all change once he comes home! ;)

so how is all of the special ks doing with school? how's Kennedy? have u started the homeschooling yet? do u have her sit there for six hours like school or is the homeschooling day gonna be shorter? just wondering...love ur blog (:
They are doing great!
Kassidy and Kameron both love their teachers and have had a great start to their year. Kassidy, being a 5th grader, gets a "job" being a 5th grade helper. She had to choose a job and interview for it and she now helps one of the Kindergarten teachers every morning as soon as she gets to school. She is thrilled! She's been talking about doing this since last year. :) I went to school and had lunch with both of them last week, which is always fun. I'm just glad they like me to come eat with them! :o)
Keeghan is enjoying Mother's Day Out. A spot opened up in the 3 day program so he is now going Monday, Wednesday and Friday instead of Tuesday and Thursday. This gives me more time to focus on Kennedy's schooling. He really likes his teachers and is enjoying the "jobs" he gets each day too... last week he was the line leader. :)
Kellsey is still enjoying school as well. She really likes her teacher and is warming up to the kids there. She is happy to go to school each day and happy to be picked up when I go to get her. Her teachers always talk about how sweet she is and she's becoming more and more vocal there... but no one knows what she's saying! haha She's FINALLY napping at school, which is a good thing because before she wouldn't sleep at all!
Kennedy is doing well, we have done some introductory stuff and gotten ourselves organized. I have my lesson plans done up till October now and we are ready to go! I was planning on starting this week, but our trip to California has thrown that just a little. I AM taking some school work with us so we're unofficially starting, but I'm not going to adhere to the strict schedule that I will once we are at home. Our homeschooling day will most likely be shorter, by law we have to do school for 4 hours every day and we should easily be able to get all our work done in that time. It goes by MUCH faster when you're one on one. :) I plan on blogging about a lot (but not all of course) of what we do with pictures and/or video once we really get going.

oh & one more question, when does frank get home for R&R? im sure the kids will be excited to see him! srry for all the questions!!! :)
He'll be home the beginning of November for R&R which is 2 weeks. He will be here for Kassidy, Kameron and Kellsey's birthdays! :) We are very excited about that and can't wait for him to get here!!!

I love your blog and your kids' names. How did you pick them? DId you start out with having a pattern for all their names or did it just happen? Sorry if this is a repeat(i.e. it's been asked and answered).
I actually did a series of posts on this... You can find them here:
The Art of Naming My Kids Part 1
The Art of Naming My Kids Part 2
The Art of Naming My Kids Part 3
The Art of Naming My Kids Part 4
I guess I need to add a Part 5 now, though Part 4 really explains it all! haha

And Renee, as far as Kellsey's fear of characters I have an idea of how it might help her to get over that. As you might know I'm a professional clown. I don't get to do it all that much because of the kids, but I've done it at a few school events. One of the teacher's granddaughter was terrified of clowns. So what I did was show her a picture of myself dressed as a clown and told her that it's just me with makeup on. I showed her the makeup and let her touch it. She is no longer terrified of clowns. She goes right up to them. So if you can I'd find someone who dresses in costume and let them show her it's just dress up. Halloween might be a scary time for her this year if you don't find a way to make her more comfortable with it ;). She might still be too young though to really get it, but it is worth a try. Then again it might be a good thing that she's so afraid of people in costume ;). Someone else I knew I had offered to do the same thing for and she refused because she liked her child being afraid so he wouldn't go off with a stranger just because they were dressed up in a costume. Personally I thought that was a bit extreme, but to each his own, right?
That's a good idea... she's never seen a clown. Frank is scared of them too! haha I imagine Kellsey wouldn't like them much. I wish I knew someone who dressed up... If I remember right, she didn't even like Santa last year. I KNOW she didn't like the Easter Bunny. I'm more worried about her going off with strangers not in costumes than ones in costumes. She really would go off with just about anyone, especially men. So scary.

Hi there! I have been following your blog for some time and finally decided to write... :-) Your family is beautiful and I love the way you respond to questions. So, I have one for you! Do both of your daughters have "full" Downs Syndrome or does your little one have a mosaic form? I ask because everyone that meets my little girl asks if she has Downs (even Drs.). Genetics test indicate that she doesn't but they didn't test enough cells to determine if she has a mosaic form... I can't decide if I want to put her through that test. She has mild ataxic Cerebral Palsy and the delays that happen with that are similar to those with Downs....
Anyway - I was just curious! Thanks so much for sharing your family! Sesame place looks like fun and we are planning a trip there soon!

Kennedy and Kellsey both have regular Trisomy 21. We too wondered if Kellsey might have Mosaic Down syndrome, but we had her Karyotype done not long after she came home and it came back the same as Kennedy's. I was glad to know, for no other reason that just knowing... and I think it's so neat to see the chromosome studies on paper. I have both of the girls karyotypes saved in case they ever want to see them some day. Good question! :)

When do you leave for your grandfather's funeral?
Tomorrow afternoon.

Renee I am cracking up! There are photos of my little brother in the same pose as Kameron, arms cross, standing on the outside of the characters. Hilarious! I might have to send you a picture.
LOL That's the, "I want to think I'm too cool for characters, but I really still want to meet them" pose! hehehehe

Love the pics of Sesame Place! I am wondering about Kennedy's swim dress. I noticed it one other time and just wonder if it is a fashion thing or if there's any other reason she wears that rather than a regular swim suit?
I just saw it and thought it was cute. :) Came from Target. She actually has a few others too, but that one's her favorite... because it makes her look like a Sincess. :)

Note: Hey Jemma, I did get your question, but my answer became REALLY long, so I'm going to dedicate a whole post to it soon. Watch for it!

Pics from Philly

Here are pictures from when we went to Philadelphia for Kennedy and Kellsey's appointments at Shriner's. We kept with tradition and took a trip to Sesame Place, made possible by the Here's to the Heroes program.

The kids love Sesame Place, even Kass and Kam still love it because of all the water areas! My mom talked them into going onto the roller coaster this year, and I think they liked it. :) Kassidy TRIED to talk Kennedy into going down one of the little water slides, but they got to the top and Kennedy chickened out. LOL Maybe next year! Kellsey was terrified of the characters, but loved the rides... the faster the better for her. I think she is going to be my thrill seeker! She was too little to go on the big roller coaster, of course! Keeghan refused to go on any rides for some reason. Wouldn't even try them... he usually likes them, so who knows what THAT was about. All the kids loved the water of course! Our friends Megan and Olivia joined us for the afternoon. They live close by and have season passes, so we were excited to hang out with them. :)























These pictures were at our friend Marlene's house... we love spending time with her and her family. Here are pictures of the little kids with Marlene's daughter Aleena. This was at the end of the night... they were all a little tired and goofy! :)


And that's it. We did A LOT more in Philly... saw lots more friends and ate a TON, but I didn't have my camera readily snapping this time... we were just enjoying the break from every day life and having fun... and trying to stay cool. It was HOT! We look forward to going back again in January... no water parks then, though! ;)

Sunday, August 22, 2010

I Will Survive - Homeschool Version

A friend sent this to me today and I couldn't help but smile. I know I have a few readers out there who homeschool... I hope it makes you smile too! :)

Saturday, August 21, 2010

Party Day!

We've had a party kind of day today! We headed out this morning to our friend Jack's Make-A-Wish party. Jack and Kennedy went through chemo at Vandy around the same time and they live here in Clarksville near us. We were excited to join in on their special day. Keeghan was very excited to meet Spiderman and a bunch of other superhero guys who I can never remember the names of... my boys could tell you though! LOL Here are a few pictures!








After that party we drove a few blocks over and dropped Kassidy off at a friend's house for a birthday party. While she did that, I took Kameron to the mall to spend a Border's gift card that's been burning a hole in his pocket all Summer. It's been a fun day! I am off to wash the frosting out of Kennedy and Keeghan's hair (because it's way more fun to wear your cake than eat it!) and then hopefully we can all go to bed early! I'm TIRED!

Hope you all had a wonderful Saturday!

Friday, August 20, 2010

Can you vote please?

Tali is a plus sized model from the show More To Love and she is also a motivational speaker who reaches out to young girls. This is so important in today's society where girls are focused on body image. Tali is taking part in a modeling contest and needs votes to win. You can vote once every day on the left side of this website from now until September 12th. Go vote! It will only take a second!

The R Word... again

And again and again and again.

Take the Pledge.

Wednesday, August 18, 2010

A Time to Mourn...

Jack Lynn Perkins
February 12, 1925 - August 18, 2010


Ecclesiastes 3 says there is a time for every activity under heaven... verse 4 says there is "a time to weep and a time to laugh, a time to mourn and a time to dance", and in our family right now, spread across the country, we are mourning, and we are weeping.

Earlier tonight, my grandfather, who we all know as Bompie, passed away peacefully at home, with my Nonnie by his side. While we knew that it was coming, for those of us who love and know Bompie, and what a wonderful man he was, we want him here. With us.

When I was growing up, Bompie was one of those men who was always larger than life. The sun rose and set in him. My favorite part about spending the night with my grandparents was knowing that Bompie would make his famous pancakes for breakfast! I later learned that they were just Bisquick, but to this day, I promise you, they were the best pancakes EVER. I also loved wearing his t-shirts to bed when I was really little... they were huge on me! I remember thinking it was the greatest thing! LOL

Every morning when I woke up at their house my Bompie and Nonnie would be sitting at the dining room table doing their devotions together. My Bompie would be reading to my Nonnie from his Bible, which was worn from years of use. She would sit there and file her nails and listen. I would curl up on the couch and just listen to them. When he was done he would tell me about what he had just read and make sure I understood what it meant and then we would pray.

As I grew up I got to hear all his stories about being in the Navy during World War II. I heard those stories over and over... and over. ;) (And when Frank joined the family he got to hear them all which means I got to hear them again!) He was VERY proud of his time in the military and the men he served with. I was VERY proud of him and thought, "WOW, what a brave thing to serve in our military!"

We spent almost every holiday at Bompie and Nonnie's house... all my cousins came. At Christmas we would sit around the tree and open presents, at Easter there would be an egg hunt, 4th of July they would bar-be-cue, they were good times... Lots of memories sitting in Bompie's lap while he took a nap and we watched cartoons. :)

I loved going to church with Bompie and Nonnie... we always went to church at home too of course, but there, Bompie would always take me around to his friends and say with pride, "This my granddaughter! She's come to visit us!" And then of course their friends would dote on me... until I became a teenager of course and then I would take off with the youth group and never look back! (Sorry guys!)

They also made a special effort to make it out to my church and/or school events any time I was going to sing or do anything special. It was somewhat of a drive, but they were always there, front row, eyes gleaming with pride. Then my Bompie would tell everyone at MY church, "This is MY granddaughter!" :o)

Ahhh, I could go on forever with memories of going to the park and the beach and my favorite Mexican restaurant, but all of it boils down to, Bompie always let every one of us know that he loved us and that he was proud of us and that he was praying for us. He told us that ALL the time. He would say that the few in our family that are not Christians yet, we would just have to pray for a little bit harder. When times were hard, sometimes he would scratch his head, say something like, "Well, we can't really know what God is thinking sometimes can we? We just have to know He has it all figured out up there."

My Bompie may not have had all the answers, but he loved his Lord and he loved his family without fail. I will miss him every day until we meet again in Heaven. Even though right now it is our time to mourn and weep, it is HIS time to laugh and dance as he is in the presence of his Savior. A carpenter by trade, I know he is up there helping to prepare a place for the rest of us.

We love you Bompie.

Tuesday, August 17, 2010

Kennedy update and stuff

For those of you who are not friends with me on facebook, or missed my status update, Kennedy had an oncology check up today and her counts were 100% perfect!! Always good to hear! We are now clear for 4 months. We'll go back again in December. After our next appointment we will have an appointment at the Survivorship Clinic. I'm not sure what that all entails, but just the name of it kind of gives me chills! ;)

Kennedy and Keeghan were down with a 24 hour virus on Friday which I then caught over the weekend and I am just NOW finally recovering from. It has thrown EVERYTHING off, so I am going to make this short and sweet tonight. I have lots to do and am still feeling like I have days of sleep to catch up on even though that's really all I've been doing!

I will try to get some pictures or something posted tomorrow! Hope everyone had a wonderful Tuesday!

Monday, August 16, 2010

What friends?!

After Keeghan's bath tonight, we were talking about him going to school tomorrow. We had the following conversation:

Me: Keeghan, are you excited about school tomorrow?

K: YEAH!!!

M: Do you remember your teacher's names?

K: Yeah... Miss Debbie and Miss Courtney.

M: That's right. You know what I want you to do for me tomorrow?

K: What?

M: I want you to learn ONE of your friend's names.

K: What friends?!

M: Your friends in your class.

K: In my class?

M: Yeah... you know, one of the other kids in your class, I want you to learn one of their names.

K: What kids?!

M: Keeghan, you know when you sit at your table at school... and next to you are other kids?

K: Yeah...

M: Those are your friends!

K: What are you talking about?!

M: Never mind...

Sunday, August 15, 2010

Routine...

We are back into routine... and I have to say, I was dreading it. The bedtime fights, the morning rush of "Find your shoes!", "Where's your backpack?!", "We have to go... NOW!". We had plenty of those hectic mornings last year. This past week though has been surprisingly calm and easy. Everyone has been ready up to 20 minutes early, and dare I say it, bored! Now maybe it's because it was still the first week of school and Kass and Kam are still anxious to get there and see all their friends, or maybe it's because we're starting out the year just a little more organized.

Kassidy and Kameron have this chart:
(click to enlarge... and ignore my messy writing!)

So when they wake up in the morning and when they get home after school, there is NO question about what needs to be done. No one is asking me, "What do I do now?" They refer to the chart and get moving.

I also bought this shelf at Target for $10.00:
Every night the kids pick out their clothes for the next day and put their shoes underneath. No lost shoes, no problem! Even Kennedy and Keeghan know now that when they wake up, they need to get their clothes off the bench and get dressed.

I think that's another thing that's made mornings easier... last year Kennedy needed quite a bit of help getting ready and Keeghan needed TOTAL help getting dressed. They both now get completely dressed on their own with just a little prompting from me to keep moving. (They're easily distracted! LOL) Keeghan does have some trouble getting his shirt off sometimes, but that's easy. Then, I'm left to get me and Kellsey ready and we're DONE! It's really amazing! My babies are growing up, but that's not such a bad thing sometimes ;).

Here's to hopefully a year full of easy morning and bedtime routines!

Saturday, August 14, 2010

Q&A #155

wish I got in before your Q&A. would love to know all about Kellsey how she is going, bonding, school how did she go with the seperation,anything else about her what she likes to play,how she is with the kids...
I've answered some questions in my previous Q&As about her too, but Kellsey is doing ok, better in some areas than others. She seems to love school, still is not talking much, but is going to speech therapy every week. She loves to look at books, play ball, play with her magna doodle, and play with any toys that play music or light up. Kellsey loves the kids, Kassidy is still her favorite (which she will brag about any chance she gets! haha). She and Keeghan will get into little tiffs like any three year olds will, usually over sharing toys, but they also will play together well and love to laugh together. She plays well with Kennedy and Kameron, too. Can't wait until she starts talking so we know what's going on in that little head of hers! :)

So here's some questions for your next Q&A I was thinking of this morning ;). Did you move Kellsey into the bedroom with the girls yet? Is she sleeping better for you at night now? It is hard to believe sometimes how long she has been with you and how much she has changed from the picture you have in the button for Bringing home Kellsey.
No, Kellsey won't sleep unless she is completely alone... which is very ironic coming from an orphanage! She DOES sleep all night now though which is very nice. :) I'm not sure when I'll move her down with the girls, for now we have no plans to move her.

I was just wondering how common is it for adults with DS to get married in your neck of the woods? Here it is highly uncommon, unfortunately, but in Germany I attended a wedding of a young couple, both with DS.
I don't have an actual statistics, but I seem to hear of at least 3 or 4 weddings a year and of course there has to be more I don't hear about. Still uncommon, but it does happen. I have not attended a wedding where the couple has Down syndrome yet, but I hope to one day... hopefully one of those being Kennedy's and/or Kellsey's!

Honestly, though, you SHOULD have at least ONE card in case of emergency, lol :o)
What?! You mean I can't use my Children's Place card in case of emergency?! LOL Just kidding! Actually we have talked about that before. It's very hard to rent a car without a credit card. We just have never followed through and actually gotten one. It's on our "to-do" list!

Since the military was brought up I have a question. I obviously know why my family has chosen to live and shop on post where we are stationed. I was curious why your family has chosen to live and shop off post? It's obviously none of my business so if you don't want to answer that's fine!
Really, it's just personal preference... Frank wanted to leave work and leave work. We live somewhat far from post and it doesn't really make sense gas wise (or time wise) for me to drive there to shop. Some of my friends that live near me do shop there, I just don't... the last time I was on post was in March when I took Frank to leave for Afghanistan. It works for us. :)

Now I want to know (as a fellow military spouse) where is it that we go to get everything that is "new and perfect" issued to us? LOL! :O)
I still haven't figured that one out. I must have missed that FRG meeting! LOL

Oh my goodness these are adorable! If you don't mind me asking, where did you find them? I would love to get one of these for Mabry. We are already talking about homeschooling her when she gets older and one of these would be perfect! Did they come with little matching chairs?
You can find the desk here. The chair was included! It really is a great deal and is big enough to last for several years! :)

Cute!! I can't believe they have already started school! We don't start until the 23rd of August. when do they get out for the summer?
We get out in Mid-May, which is pretty early. It's awesome in May... not so awesome in August! LOL

I hope Kassidy's parent meeting goes okay. 2nd day of school and the teacher wants to meet with you already? I'm going to assume it's just one of those here's what we're doing this year kind of meetings and nothing bad already ;).
Yes it was for all the parents, just an overview of what to expect for the year. I actually really like these meetings... it answers a lot of my questions before I have to ask them! :)

Um, you get in the line to get Kass and Kam at WHAT time? lol
Umm what? I'm sorry... can you repeat that question? LOL

So...I think I missed it...are you homeschooling Kennedy?
Yes... you can read about that here.

iPods/iPads for kids with SN

It is becoming more and more common for kids with Special Needs to be seen with an iPod Touch or even the new, cool iPad. Several of my blog readers even have one for their children, some as young as one year old. Many app developers are catching onto this and creating great educational apps for kids of all ages and abilities teaching skills like reading, writing, colors, shapes, letters, numbers; and for older kids: addition, subtraction, multiplication, division, geometry, algebra and on and on. The possibilities are endless. There are apps that teach kids how to talk, teach them rhyming words, teach them their animals, state capitals, and so much more. The need for endless flashcards has literally been eliminated. Thank goodness.

Here is an article talking about this new craze of using iPads and the iPod Touch as an educational tool. There is some great information here an in the comment section. If you are a parent of a child with Special Needs, does your child have an iPod or iPad? If so, how old are they? What is your favorite app for them? If they don't have one, do you plan on getting them one at some point? I look forward to reading your responses, especially hearing what your favorite apps are! :)

Friday, August 13, 2010

Keeghan's First Day of School!

Keeghan started Mother's Day Out on Tuesday. He goes twice a week (Tuesday and Thursday) from 9-2. He was SO excited on Tuesday morning when we were getting ready to go! He talked about his backpack and the friends he would make. I dropped him off, met his teachers, he ran in and didn't look back!!

He had a great first day. When I picked him up he told me he played on the playground (evidenced by all the dirt he wore home! LOL), played in the classroom, and told all his new friends "Hi!". He talked about school the rest of the day. :)

Thursday went great for him too! He played with puzzles and had music class, which he loved. He really likes both of his teachers, Miss Debbie and Miss Courtney. They both said he's been VERY good at school... why are they always better for people other than their parents?! haha I can't wait to hear about his adventures every day and all the new friends he makes!

Here are a few pictures from before school on Tuesday!