We actually didn't think we were going to be able to go this morning. Kennedy woke up around 6:30 and wasn't feeling well at all. I was really worried about her! I made her a little bed on the floor in the living room and gave her a bowl because she said she thought she was going to throw up, and we called our friends to let them know we weren't going to be attending the Buddy Walk, after all. Then, a few minutes later, she perked up and announced she was "much better!" OOOOK! So we got ready quickly and kept a close eye on her... and she really was ok! Crazy kid!
There were a ton of people at the walk, they are estimating over 3,000! We got there around 9:00, the kids ate breakfast, we said hello to friends and then it was time to start the walk...
The kids with some Star Wars guys.
I won't say who because I got yelled at for thinking the guy in black was Darth Vader. Apparently, he's not. haha
My Kennedy :)
Kellsey chowing down on a bagel
Kennedy and Jaemen... he was whistling! LOL
Keeghan getting ready to walk (and Kellsey in the background, trying to stay cool!)
Carmen and Jaemen
Kennedy's no fool, she had a chance to ride and she took it! ;)
Keeghan, our friend Tammy and their daughter Mia
Tammy's son Matthew
Jaemen and Carmen by Jaemen's sign! Next year I'll get on the ball and get one done for my girls, too!
Kellsey being silly!
Goofy girl!
They handed out chocolate chip cookies about 1/4 of the way through lol.
The Betancourt Family. They were friends with us in TN and moved here the same time we did! :)
Kennedy ditched the stroller for a wagon ;)
Kameron on this big tank looking thing...
Keeghan got up there but was terrified he was going to fall! haha
Me with my Buddy Walkers! :o)
It's too bright out here!
Keeghan got to sit in a real fire truck!
He was so excited!!
Kassidy at the end, she took off with her friend Haylie, so we barely saw her.
Kellsey was WAY overheated when we got home. She decided to lay here and we were NOT getting her up! haha I put a cool washcloth on her head to get her body temp down and she's sleeping soundly there right now. She had fun though!
It was a great day!! We are sad we'll miss seeing our friends in TN this year, but I know theirs will be a hit too!! Until next year... :)
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12 comments:
Renee, have you heard of the gel things that you can use on the back of neck to keep cool? I think firemen use them. I'm sorry... I don't remember the official name. I got them at a fire & safety store. My girls used them in the very hot summer playing softball. Maybe that would help Kellsey stay cooler and you could keep them iced in a small cooler.
Looks like you guys had a great time. I can't wait to go to our in San Diego. But luckily not until October because it is way too hot her right now.
Katrina
Carlene's soon to be momma :)
www.operationorphannomore.blogspot.com
Grecia is right... that might help. I think that they are called Frogg Togg's. (Or something close to that)
The guy in black is a tie fighter pilot. If you were really dying to know. ;)
They're the guys who fly around getting shot by the good guys!
Here's some a resource page with links to different adaptive cooling wear - perhaps you could find some things for Kellsey. I'd hate to worry about her getting sick from heat exhaustion or heat stroke! Must be worrisome for you. are you able to tell when she's had too much? what do the doctors say about treatments for the not sweating?
Those frogg togg cooling towels look pretty interesting too...
Link http://www.disability-resource.com/adaptive-clothing/vests-cooling-heating-lifting-&-restraint.php
yeah give her a frogg togg when she is out, all you have to do is add more water when its not cool anymore! You can order them online but I have seen them at sports authority too.
Renee,
Your pictures are priceless! Kennedy and Kellsey are beautiful little buddy walkers, and I especially like the picture of the three of you (you look wonderful, too!). It looks like a good day for all of the Special Ks, minus the heatstroke...
Have you ever used one of these?
Chill Towels
http://www.chilltowels.com/retail-store.html
or these? Froggs Toggs
http://www.froggtoggs.com/
I have severe Dysautonomia/POTS related to an EDS/Marfan Syndrome Overlap Hereditary Connective Tissues Disease (my genome is being analyzed at NIH to figure out where the mutation is since it's not a known one), and cannot regulate my body temperature at all. I have used these products, particularly the Froggs Toggs, and they do help. Anything that provides a degree of relief is worth it! I hope Kellesy cooled down.
Wishing you a chilled-out evening, in every sense of the word!
- morgan amanda
www.inthegaleisheard.blogspot.com
P.S. I sent you an email and hope you received it! I am a faithful reader and follower, and love your blog. You are as close to a Super Mom as they come! I know your life is at times the antithesis of easy, but you make it look like smooth sailing. Thanks for the good modeling!
you can buy those spray bottles with battery operated fans. they really help to keep cool on the beach so probably would help Kelsey keep cool as well.
I was wondering if Keegan has a form of Down Syndrome too? Or is he just really small for his age? I thought you mentioned that he was four yrs old? but he looks only about two ish!
That close up shot of Kass is the most beautiful photo of her ever. So lovely!
Looks like you all had a lot of fun. Sorry it hit Kellsey so hard, though...
Always praying!
Psalms 139:1-3 O LORD, thou hast searched me, and known me. Thou knowest my downsitting and mine uprising, thou understandest my thought afar off. Thou compassest my path and my lying down, and art acquainted with all my ways.
Prayer Bears
My email address
love your buddy walk pictures. poor kellsey
do you have a cooling vest?
Actually, Amanda... That is a Stealth Trooper...not a Tie Pilot. John hears that ALL the time.
It is a character from the Star Wars comics. It was never in the films...
Good guess though... :)
From,
The Sandtrooper
:)
Your babies are absolutely gorgeous! They are truly blessed and I am so happy that you do those great activities with them. My little brother name is Davie and he has down syndrome , he will be 13 next week and I love him more each day! In Mississippi, we have a ms down syndrome buddy walk each year in honor of families who knows someone with the syndrome. So inspiring, God bless! Carla
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