Tuesday, February 28, 2012

Palindromic Rheumatism

Last week, Keeghan finally had his appointment with his new Rheumatologist. We've been waiting for this appointment forever since we had to cancel his last one the beginning of December due to the stomach bug. I was worried we'd have to cancel this time as well when he got Influenza and then we got a freak snow storm, but everyone was feeling mostly ok and a neighbor cleared my driveway for me (thank you, neighbor!) so we were able to make it! I was so glad because if we would have canceled, we wouldn't have been able to make it again until June.

The doctor looked over Keeghan's records, drew some blood, looked him over and diagnosed him with Palindromic Rheumatism. Yeah, I've never heard of that either. The good news is, his pediatrician was afraid that it was Juvenile Idiopathic Arthritis... and this actual diagnosis is better because it hardly causes permanent joint damage which is awesome. It describes a lot of Keeghan's symptoms perfectly... it involves large joints and tissues like his hips and ankles. It can be accompanied by fever and swelling, which his are, and it comes and goes, hence the name Palindromic like a palindrome word. It can even go away for a year or so and then come back, from what I've read.

The Rheumatologist gave me a prescription for a stronger pain medication for Keeghan to use when he has an attack and we have to go back and see him in 6 months. It's good to have answers and good to know that this isn't doing any permanent damage to his joints. I have read that sometimes this CAN develop into arthritis later, but we'll deal with that when/if it happens.

Thanks for all your prayers for Keeghan!!


Joy said...

Praying for you guys. Glad it's not something more serious!

Paige said...

yay! Finally answers! Also, if it does develop into arthritis down the road there's diet changes you can make that can ease the symptoms. My friend has arthritis and follows the diet changes and has minimal flare ups now.

Anne B. said...

Glad that it is the lesser of the 2 evils! And I will be praying that he has no flare-ups for a very long time...if EVER!!!! (((HUGS))) from RI where we are awaiting snow as well!

Lynn said...

I vote for it just going away and never coming back!
I'm here praying right now.
Psalms 116:1-5 I love the LORD, because he hath heard my voice and my supplications. Because he hath inclined his ear unto me, therefore will I call upon him as long as I live. The sorrows of death compassed me, and the pains of hell gat hold upon me: I found trouble and sorrow. Then called I upon the name of the LORD; O LORD, I beseech thee, deliver my soul. Gracious is the LORD, and righteous; yea, our God is merciful.
Prayer Bears
My email address

Mundanemomma said...

So glad you finally got some answers for at least one child! And I'm so happy for you that it's not the worst diagnosis, as the dr thought. Hopefully he doesn't have too many or any flare ups at all! Did they say if he'd grow out of it?

JennaJennJenn said...

Poor Keeghan, I hope he doesn't have to deal with the flares too often. I'm glad it shouldn't cause permanent joint damage though.

my family said...

Ah. An answer. Praying it doesn't come back for a long time

Lynn said...

Know that I'm continuing to pray!
Isaiah 25:4 For thou hast been a strength to the poor, a strength to the needy in his distress, a refuge from the storm, a shadow from the heat, when the blast of the terrible ones is as a storm against the wall.
Prayer Bears
My email address

~just.emma~ said...

So glad it's the lesser of things...and sounds manageable! Prayers as always!

Monicas Mom Musings said...

Huh is this hereditary? Can there be certain things that cause a flare up that you should try to avoid? I guess I should just go read that link to get the answers ;). Glad you know what it is and it's not lymes.