Thursday, March 29, 2012

Shriners 2012

Hello from Philadelphia!

The little girls and I have been here since Tuesday evening. We have eaten some good food, seen some good friends, and had some fun! We still have a couple more days here, so we are excited to eat even more good food and see even more good friends! ;)

Today was the girls' appointment at Shriners Hospital. They had X-rays done and then we waited to see Dr. Samdani. He went over Kellsey's films first. Her AAI is still sitting right around 5mm which is holding steady. That's a good thing. Because it hasn't progressed in the last two years, he feels safe in letting Kellsey go two years between appointments. That's good news!

Kennedy's films also looked good. He was very pleased to see that all her pins and wires are still in place, her incision still looks great and she's had no issues. He wants to see her again in a year. We did have ONE request... We talked to him about Kennedy possibly being allowed to learn how to do cartwheels in dance. Dr. Samdani kind of stared at me for a minute and then I suggested maybe a neck brace while she's still in the learning process. She has been wanting to learn SO badly!! The thought of the neck brace made him feel better. It's not the actual cartwheel that's the problem, it's the potential of falling during the learning of said cartwheel that's the problem ;). So we headed over to the brace shop and picked up two braces for Kenn to wear while she's practicing. She is so excited!

The other thing we talked to him about was our next appointment. Our local Shrine who covers our plane tickets said that now that we are in Colorado, they wanted us to transfer care to a Shriners closer to us like Sacramento. I was kind of nervous about that. Dr. Samdani has been with us since the beginning, and should Kellsey ever have to have this surgery, I wouldn't want anyone doing it but him. He said that he would see what he could do to keep us though, so I am hopeful that we will be back here again next year! We really would miss Philly!

Anyway, that's the update on the girls. We are so thankful they are doing well and have a great team behind them to keep an eye on them! I have taken a few pictures which I will post when I get home. If you haven't entered my giveaway on my last post, be sure you do!


ErinL said...

HEY!...if you go to a different Shriners don't go to Sacramento, come to St. Louis!!

Island Baby said...

I was wondering ( please forgive me but I dont have experience with DS children) if Kellsey and Kennedy will ever be capable of living on their own once they are adults or will they always require lifelong care and assistance ?
I'm glad you are able to enjoy friends and good food while getting the girls' medical stuff done.

Lynn said...

Always here praying!
Psalms 86:1-4 Bow down thine ear, O LORD, hear me: for I am poor and needy. Preserve my soul; for I am holy: O thou my God, save thy servant that trusteth in thee. Be merciful unto me, O Lord: for I cry unto thee daily. Rejoice the soul of thy servant: for unto thee, O Lord, do I lift up my soul.
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Lynn said...

Know that you're always in my thoughts and prayers!
Psalms 86:5-7 For thou, Lord, art good, and ready to forgive; and plenteous in mercy unto all them that call upon thee. Give ear, O LORD, unto my prayer; and attend to the voice of my supplications. In the day of my trouble I will call upon thee: for thou wilt answer me.

charlotte said...

I was wondering who looks after Kassidy Kameron and Keeghan now your mum's not right round the corner??

Glad to hear things are ok with the girls!!

Lynn said...

Glad you're home! Sorry the ride was so rough!
Praying right now!
Psalms 86:15-16 But thou, O Lord, art a God full of compassion, and gracious, longsuffering, and plenteous in mercy and truth. O turn unto me, and have mercy upon me; give thy strength unto thy servant, and save the son of thine handmaid.
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