The girls and I flew in from Philly last night and got home around 11:00. The flight was crazy bumpy and I thought the plane was going to fall apart at one point, but beyond that it was pretty uneventful... Well except for the fact that Kellsey's G-tube came loose and pediasure went everywhere. That was fun. But besides THAT, really, uneventful! ;)
The kids went back to school today after a week or do off for Spring Break. Kennedy slept in since we got home so late, I didn't want to set her up for a bad day at school. Then I made an appointment for Kellsey with her ped.
On Friday we went to the Aquarium in New Jersey with my friend Joy. About half way there, Kellsey started crying really hard and gagging like she was going to throw up. She was FINE until then so I was shocked! I grabbed a plastic bag and held it under her, Joy kept driving, Kellsey never threw up and eventually stopped crying and acted fine. Throughout the day at the aquarium though, she would have a little crying fit and then after a few minutes she would be fine. She had a bit of a runny nose and felt a little warm so I thought maybe she was getting a cold and the gagging was from the post-nasal drip.
Friday night her temp hovered around 102 but her runny nose stopped and she was acting mostly ok, but she was really pale. Again I was waiting for her to get sick... Saturday we met our friend Stephanie for lunch and Kellsey got some mashed potatoes. At this point she hadn't eaten orally since her gagging thing in the car on Friday morning but her tube feeds were staying down fine so I didn't even think twice. She ate a few bites and then started crying and threw up. It was just minutes after her first bite. She cried for a few minutes, but she HATES throwing up so I figured that was why. Saturday night I tried some pasta and she did the same thing... So weird!!!
SO all the adults in the house were sitting around with me trying to figure out what it could be... Not a stomach bug or she would throw up her pediasure too. I was convinced of that. We talked about UTIs, ear infections and on and on but nothing made sense! I thought about taking her to the ER in Philly but I thought that either 1. they would think I was crazy because it made no sense or 2. they would admit her and then what?! Since she was acting ok as long as she wasn't eating by mouth, I decided to hold off till we got home.
This morning I got the kids off to school and took Kellsey to the ped. He immediately said "stomach bug". I said I didn't think so and explained why. He prescribed her some Zofran but I told him I still wasn't convinced. He said, "Well, I guess we could do an X-ray..." Yes. Thank you. He was totally pacifying me, I know.
So, I headed over to the lab where he decided last minute to order blood work as well, got that done then went over for her X-ray. They took one of her tummy and I saw something and said, "What's that?!" then we figured out it was her gtube lol. Then they did the chest one and it came on the screen and I said, "OK that is not her gtube!" Nope. But there IS something round in her esophagus. What is it? No clue.
So while I waited for a doctor to come in, I told them I would have to leave in a few minutes to pick Keeghan up from preschool. They didn't come, didn't come... I finally HAD to go. They caught me on the way out and said they wanted us to go straight to the ER. I explained again that I had to go get Keeghan and I would be back in 30 minutes. They weren't too happy about that but there is only one of me and even though my mom is still here, Frank's car isn't working so I'm it. I picked Keeghan up went to my house, my mom and Kennedy jumped in the car and she dropped us back off at the ER do she could have the van.
We sat in a room in the ER for about 45 minutes when the peds office calls and demands to know where we are because the ER is looking for us. I said, "Uhhh we are HERE. We've been here waiting to see a doc for almost an hour!" They insisted we weren't and we went round and round until they figured out I was at the OTHER branch of the hospital than they thought I would go to. I went back to the one where they took her X-rays and blood work, why would I drive 45 minutes across town to the other one?!
SO they ended up saying we had to switch hospitals because the GI doctor only works at this one... Whatever. So now we are here, Kellsey is admitted, and as we're going through paperwork they say they're not even going to do anything until morning. What?! So... Can we go home and come back?! Nope.
Meanwhile, Kellsey is acting fine, loving the attention from the nurses, and playing with toys. One of the docs from her peds practice came in and said he'd never have guessed she has a foreign object in her esophagus. He also admitted that her ped just ordered the tests to shut me up, but he would definitely give him a hard time tomorrow ;). Oh and there ARE two objects... One in her esophagus and one in her belly behind her gtube. So who knows what they are! I guess we will find out in the morning... 5am for repeat X-ray to make sure it hasn't moved and 6am for a scope. Her blood work also came back whacky with a super high Sed Rate, but he said we can talk more about that later. I'm kind of taking that with a grain of salt... Her blood work is ALWAYS whacky.
AND as I was typing, the GI doc called to get more medical history on her and is talking about maybe transferring her to Children's in Denver. I won't go into those details right now because it's long and complicated and may not even happen, but I'll post again if it does. In the meantime, please be praying for Kellsey tomorrow that they get whatever it is OUT safely and we can get out of here. I've been enjoying reading all the stories on Facebook about all the crazy things other kids have swallowed, I like that everyone is laughing about them now... One day we will say, "Remember when..." and shake our heads. Crazy girl!
I'll post again later. Thanks for praying.
update: They decided to do her scope tonight instead but we don't have to go to Denver so that's good! They'll be taking her back to OR in about an hour. I'll post when we are back to the room.