May I ask if she is at one of the Childrens hospitals? (my son was going to have to go to one up there and Im just looking for a reference :)
Yes, she was at Denver Children's in Aurora. Before this happened, we had only been to Denver Children's once and that was for dermatology where she was diagnosed with her anhidrosis (she doesn't sweat). All of the girls other specialists are either here in Colorado Springs or are at Rocky Mountain Children's which is also in Denver. Kellsey's GI in Denver is now Dr. Kramer and he is really nice and seems really knowledgeable (at least about button cell battery ingestion!). I also really liked the GI assigned to her here at Memorial (Dr. Kurbegov). She was very kind. I am hoping to get Kennedy into her for follow up on her colitis issues so we don't have to drive all the way to Denver. That ALL being said, I really LOVE all the specialists we've seen at Rocky Mountain Children's... everyone there has been so friendly and knowledgeable about everything... though we've never had to see GI there. :)
Wow that's so scary ! Did you ever figure out where Kellsey got the batteries from?
No... I don't think we'll ever know for sure since she can't tell us and we were travelling and in SO many different places that whole week. Just the other day one of my friends on FB was sitting in an airport and looked down and saw one of these batteries sitting on the seat next to her... she took a picture and tagged me in it. Kellsey could have easily picked it up from the airport terminal while we were waiting to fly to Philly. Who knows?
My 95 year old grandmother lives around the corner from the Art Museum location and raves about it. I went to visit yesterday and we tried to go for dinner but they were closed. I never realized that her Sabrina's is your Sabrina's. Such a small world!
That IS a small world!! I love it!! Who knows, we could have been eating there at the same time at some point! ;o)
Can she drink tea? Chamomile tea is suppose to be great for the esophagus...don't think it would hurt to try, you can ask her doctors if she's allowed tea. God Bless!
Nope, she's not allowed any liquids by mouth because of her severe aspiration. This is the main reason she has her g-tube. I don't think it would have the same effect if I put it in there. ;o)
really could she be any cuter? Where did you get that shirt <3 it
We got it last year when we went to The Miracle Party last year. One of the vendors there was selling the shirts. They had lots of great ones but that one was my favorite.
Will Kellsey be getting regular MRIs to check on things? How often?
Yes... I'm not sure how often at this point, I guess it will depend on how her healing progresses. I know she'll be repeating the MRI, the endoscopy and the test where they put the NG tube through her nose and put barium down (I don't know what that's called). Her first MRI is scheduled for May 8th.
i know you are so relieved your mom was able to stay longer (didnt you say she was going to have to go back?)
I know you all will sure miss her being around.
Dont you think she should just look for a house near you? I mean it would be closer and in HER best interest, right? LOL
Yes, she was originally scheduled to go back on the 14th, but she extended her trip, thank goodness! She doesn't want to move here because she's afraid the Army will move us again... otherwise I would definitely try to convince her of that! ;o)