Saturday, April 21, 2012

Q&A #239

May I ask if she is at one of the Childrens hospitals? (my son was going to have to go to one up there and Im just looking for a reference :)
Yes, she was at Denver Children's in Aurora. Before this happened, we had only been to Denver Children's once and that was for dermatology where she was diagnosed with her anhidrosis (she doesn't sweat). All of the girls other specialists are either here in Colorado Springs or are at Rocky Mountain Children's which is also in Denver. Kellsey's GI in Denver is now Dr. Kramer and he is really nice and seems really knowledgeable (at least about button cell battery ingestion!). I also really liked the GI assigned to her here at Memorial (Dr. Kurbegov). She was very kind. I am hoping to get Kennedy into her for follow up on her colitis issues so we don't have to drive all the way to Denver. That ALL being said, I really LOVE all the specialists we've seen at Rocky Mountain Children's... everyone there has been so friendly and knowledgeable about everything... though we've never had to see GI there. :)

Wow that's so scary ! Did you ever figure out where Kellsey got the batteries from? 
No... I don't think we'll ever know for sure since she can't tell us and we were travelling and in SO many different places that whole week. Just the other day one of my friends on FB was sitting in an airport and looked down and saw one of these batteries sitting on the seat next to her... she took a picture and tagged me in it. Kellsey could have easily picked it up from the airport terminal while we were waiting to fly to Philly. Who knows? 

My 95 year old grandmother lives around the corner from the Art Museum location and raves about it. I went to visit yesterday and we tried to go for dinner but they were closed. I never realized that her Sabrina's is your Sabrina's. Such a small world! 
That IS a small world!! I love it!! Who knows, we could have been eating there at the same time at some point! ;o)

Can she drink tea? Chamomile tea is suppose to be great for the esophagus...don't think it would hurt to try, you can ask her doctors if she's allowed tea. God Bless! 
Nope, she's not allowed any liquids by mouth because of her severe aspiration. This is the main reason she has her g-tube. I don't think it would have the same effect if I put it in there. ;o)

really could she be any cuter? Where did you get that shirt <3 it 
We got it last year when we went to The Miracle Party last year. One of the vendors there was selling the shirts. They had lots of great ones but that one was my favorite. 

 Will Kellsey be getting regular MRIs to check on things? How often? 
Yes... I'm not sure how often at this point, I guess it will depend on how her healing progresses. I know she'll be repeating the MRI, the endoscopy and the test where they put the NG tube through her nose and put barium down (I don't know what that's called). Her first MRI is scheduled for May 8th. 

i know you are so relieved your mom was able to stay longer (didnt you say she was going to have to go back?) 
I know you all will sure miss her being around. 
Dont you think she should just look for a house near you? I mean it would be closer and in HER best interest, right? LOL

Yes, she was originally scheduled to go back on the 14th, but she extended her trip, thank goodness! She doesn't want to move here because she's afraid the Army will move us again... otherwise I would definitely try to convince her of that! ;o)


Melissa said...

I love everyone we've ever seen at Rocky Mtn Children's (P/SL). We went back the hospital when Bridget was born we loved it so much when we were there for Claire's birth and NICU stay. Fabulous hospital, and so much easier (usually) to get into than Children's.

The McCammons said...

Thank you very much for the information. I have a Dr here but he was sent to Denver bc they couldn't do a procedure here. I'm not sure which hospital he was sent to, but it a Childrens. They were awesome but might have to go back again. Thank you and praying you are all doing well.

Lynn said...

Praying in Seattle!
Psalms 23:4-6 Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me. Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over. Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the LORD for ever.
My email address

Lynn said...

There just aren't words to express the comfort knowing that the Holy Ghost Himself is praying for you!
Romans 8:26-27 Likewise the Spirit also helpeth our infirmities: for we know not what we should pray for as we ought: but the Spirit itself maketh intercession for us with groanings which cannot be uttered. And he that searcheth the hearts knoweth what is the mind of the Spirit, because he maketh intercession for the saints according to the will of God.
My email address

Lynn said...

Know that I'm praying so at this end!
Revelation 7:16-17 They shall hunger no more, neither thirst any more; neither shall the sun light on them, nor any heat. For the Lamb which is in the midst of the throne shall feed them, and shall lead them unto living fountains of waters: and God shall wipe away all tears from their eyes.
My email address

Lynn said...

Stopping by to let you know I'm praying!
John 14:27 Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid.
My email address

Lynn said...

Continuing to lift up prayers!
Psalms 71:1-3 In thee, O LORD, do I put my trust: let me never be put to confusion. Deliver me in thy righteousness, and cause me to escape: incline thine ear unto me, and save me. Be thou my strong habitation, whereunto I may continually resort: thou hast given commandment to save me; for thou art my rock and my fortress.
My email address

Jesse said...

Just wondering if things were okay....hadn't seen an update in a while which is unusual. Praying for you guys! Thanks for making us so aware of these batteries. I hadn't realized how many things they are in and how very serious it is to ingest them. I have 3 littles 2 & under so I appreciate you helping spread the word!

Lynn said...

Everything's okay...right?
Know that I'm praying right now!
Psalms 71:12, 14-16 O God, be not far from me: O my God, make haste for my help...But I will hope continually, and will yet praise thee more and more. My mouth shall shew forth thy righteousness and thy salvation all the day; for I know not the numbers thereof. I will go in the strength of the Lord GOD: I will make mention of thy righteousness, even of thine only.
My email address

Anne B. said...

Thinking about you and missing your updates. I know you are an incredibly busy Mama and I am praying hard that no news is good news and that God is providing and sustaining!!! (((BIG HUGS))) from RI!