Sunday, May 27, 2012

Q&A #241

Thats funny that you say the boys look just like Daddy. Here I always thought Keeghan looked so much like you!! 
Aww thanks!! :) 

Found a cell battery in the remote for our electric heater (looks like a fire place) and in the remote to our digital picture fame.
We have one of those digital frames too... I checked our remote and yep... Thankfully the back is HARD to get off, I even had a tough time getting it off. They're everywhere I tell you! 

Renee. I was wondering if you have read Kelle Hampton's book, "Bloom" yet , and if so, could you relate to Nella's birth story? It seems you both were surprised at birth with a DS diagnosis and I can only imagine how scary that was for you both. 
I have not read her book... I have read her birth story though on her blog. There were some things I could relate to and others I could not. I could definitely relate to the fear and shock of the Down syndrome diagnosis. It's definitely a scary thing when you're not prepared. Good thing God knows what He's doing! ;) 

Kennedy looks so pretty with her hair pulled back like that! It looks like they had a great time! 
Thanks! I'm still getting used to it, but she pretty much tells me how she wants her hair now, so as long as she likes it, I'm happy! ;)

As I was reading Keeghan's birthday post, I noticed that Kellsey had a baggie in her hands. Was she eating mini marshmallows? Oh, I don't like to write anything negative, but please be aware of how she chews them. I know she's older and probably does fine with eating, but if there are any swallowing issue with Kellsey, then I want to make you aware of the dangers of marshmallows and choking.
Yes, that's what they were... we were having a hard time finding her a gluten free "treat" while she was on the soft food diet. We watched her closely and she did fine with them. Thanks though! :) 

Just a question...I work in a jewelry store and I remember when Kellsey had her ears pierced. Does Kennedy have hers done too? When did she and Kassidy have theirs done? And did Kellsey let you keep hers in? I know we have a LOT of parents of young kids complaining that kids yank the earrings out...not sure if your girls ever did? 
Yes Kassidy and Kennedy both have their ears pierced as well. Kassidy got hers done when she was really little... like 2 months old. Kennedy was just over a year old (in fact it was Memorial Day Weekend just after she turned one). We had to wait for her ear lobes to be big enough lol. None of the girls have pulled them out (but we've never used ones that dangle either), but Kass and Kenn both react to any earrings that aren't 24K Gold. I can't remember the time Kass wore them, but she is most definitely NOT my girly-girl! ;) Kennedy wears them occasionally. I took Kellsey's out before one of her surgeries (her g-tube I think) and never put them back in and they got lost :(. I need to get her new ones. 

Also, as I recall, those retainers break easy. It doesn't take much, but as my orthodontist also told me...QUICK CLICKING IT! LOL
Oh my word, I tell Kameron that ALL the time. Drives me bonkers! LOL 

Thanks for sharing this and being open about the whole issue. I only knew how dangerous these things were because a pedoaudiologist pointed it out when my son got his first hearing aids.
Yes! My friend's little boy has hearing aids and he is forever taking them out. I know it freaks his mom out since Kellsey showed them what they could do! 

Have you considered getting her homebound services? That may be an option at some point.
I've actually thought about talking to her ped about that to see what he thinks about that. I have heard from lots of parents that it's a fight to get them approved though. It's definitely an option at least in my mind. 

As for the OTHER rockstar, Miss Kellsey, I know you worry, it's just your mama bear nature. Maybe this will give her an opportunity to learn and grow? Maybe she can make some friends?
Right, in the right setting I think she COULD, but I just think this setting is setting her up to fail... or injure. It's hard to find the balance between keeping her safe and letting her grow. I struggle with it every day. 

Question though. Does kellsey speak? I was user the impression she was not yet talking? 
She has a few words and approximations... "Hi, bye, baby, dog, book" and a few more, though they're not always consistent. She's at about a 12 month level with her expressive speech which is another reason I believe she needs a smaller environment and not be in a regular Kindergarten classroom. 


Could a teacher come to the house for Kellsey instead, or could you maybe swap homeschooling with another mom with a kid who also has RAD?
Also, is RAD a permanent condition? Will she ever learn to bond with you and your family? In what ways does she not bond with you ?

According to her doctors, RAD doesn't just go away. Some kids with RAD can learn to bond, but there's really no telling what the future holds. She is on medication to try to help, but so far there's been no change. Some day I'll do a whole post on RAD and Kellsey and how it pertains to us, but it would take WAY too much typing today. 

3 comments :

Lynn said...

Always love the Q&As!
Know that the Lord is always with you, wrapping His loving arms around you and holding on tight! Praying right now!
Psalms 18:2-6 The LORD is my rock, and my fortress, and my deliverer; my God, my strength, in whom I will trust; my buckler, and the horn of my salvation, and my high tower. I will call upon the LORD, who is worthy to be praised: so shall I be saved from mine enemies. The sorrows of death compassed me, and the floods of ungodly men made me afraid. The sorrows of hell compassed me about: the snares of death prevented me. In my distress I called upon the LORD, and cried unto my God: he heard my voice out of his temple, and my cry came before him, even into his ears.
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Lynn said...

Praying!
Psalms 18:30-32 As for God, his way is perfect: the word of the LORD is tried: he is a buckler to all those that trust in him. For who is God save the LORD? or who is a rock save our God? It is God that girdeth me with strength, and maketh my way perfect.
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brook said...

just a RAD comment for anyone reading who doesn't know much about it. RAD is tough on everyone. yes, kids can learn to bond to families....but it seems like many times even when kids are "healed" from RAD they will continue to struggle with appropriate relationships. just because they learn to accept a hug from parents, does not mean that they are emotionally/mentally as healthy as other children their age. it is a large cross to bear for both the child and their families. it took our child about 6 years to learn to accept small amounts of love, and now after 9 years she is much more open to receiving and much more capable of giving love, however, she tends to struggle with relationships in general much more than children her age. so in that way, i think RAD is permanent even in the best of outcomes....it is something that *can* get better but does tend to leave lasting wounds in their lives that are apparent at times. then there are those kids who can not heal from this and can not bond and may never make enough progress to begin to form healthy attachments. so obviously permanent for them as well. it is amazing what messed up formative years can do to people. :(

brook