Say that 3 times fast. So in my last post about Kennedy's test results, I mentioned that her intestines were covered in white blood cells indicating food allergies. Those cells are called Eosinophils. They told me this word the other day but I couldn't remember it and didn't know how to spell it so when they told me it was a type of white blood cell, I just stuck with that. I know what those are. ;)
So, increased Eosinophils can mean a few things... most commonly they are caused by a parasite or fungal disease. However, this has been ruled out for Kennedy through blood tests and stool samples and her biopsies. The next most common cause is food allergies which is why they wanted her to see an allergist. Because her Eosinophil count was so high, they wanted her to get in ASAP. I called the allergist they referred her to on Monday morning and they made her an appointment on Tuesday morning. Talk about fast service!!
The allergist tested her for all the common food and environmental allergies...
When all THOSE came back normal, he did more on her arms through a different process. Those tested negative too. He also did an x-ray of her sinuses which came back normal. So, he referred us back to GI.
While I was relieved that it was NOT a food allergy (because I just knew it was going to be something like wheat or dairy that she loves!!), her GI doctor was pretty discouraged to hear this. The next step is to go to Denver to the Eosinophilia Clinic. (Yes. There's really a clinic for this.) She said they're booking about 2 months out right now but they're going to push to get Kennedy seen sooner than that, however, before they see her they'll want to examine the slides from her biopsies themselves so that may take a little while.
So of course, I asked her to tell me the name of these "white blood cells" and to please spell it for me. And then I googled. And google is not my friend. I need to learn not to google. However, to save all YOU from googling (because you know you want to), I'll just give you the rundown. So when someone has Eosinophilia (I can spell that without looking now) and they've ruled out parasites and allergies, they look at other causes. These causes range from things like Adrenal conditions, skin disorders (which the allergist ruled out), Autoimmune diseases, endocrine disorders and tumors. When they get more specific, they talk about Leukemia. A lot. Especially when the patient has already had other cancers. There's even something called Eosinophilic Leukemia... who knew?!
Our list is getting short, the respiratory things like asthma have been ruled out due to the eosinophils not being in her esophagus and lack of symptoms. All skin/allergy/parasite disorders have been ruled out. Even the colitis has been ruled out which is interesting since she has a history of it. I'm still hoping the doctors in Denver will say it IS the colitis after all. Different doctors can say different things, right? We've had that happen more times than I can count. They can't tell me if the eosinophils are in her blood or not, because they didn't specifically check for that and they said since Denver will undoubtedly want to do their own blood work they'll just wait for them to check. I'm fine with that.
And so we wait. I'm praying it's just colitis. We've dealt with a colitis diagnosis for her since 2009. And maybe it's just presenting differently now. Treat it, and all those eosinophils will go away. Right? Right. That's my prayer. Please make it yours, too. I'll update when we have an appointment for the Eosinophilia Clinic. Yes. There's really a clinic for that. Thanks for praying. Again.
PS. If anyone knows how to get purple sharpie marker off skin, that would be awesome! ;)