Monday, October 15, 2012

Kennedy Update

We are home and Kennedy is doing great! We've actually been home since before lunch, but our afternoon consisted of her eating (a lot!) and then the two of us crashing for a nap before picking the kids up from school. Kameron had honor choir after school so he just got home. Thankfully one of the ladies from our small group brought us dinner tonight so that's covered! :) Thanks, Blythe. Now we're just going to eat some food, and hopefully everyone will be ready to get to bed early. I know that Kennedy and I will be! :)

We don't know the results of either of the tests Kennedy had today. I didn't hear anything at all about her CT scan, but her GI doctor came in after that part and told me that everything went well and we'd have the results of the biopsies in about a week. She did say that she saw a couple spots that looked suspicious for Celiac's Disease. They checked her blood for the marker for this and that was negative. I thought that if it was negative then she couldn't have it, but apparently in 3% of people with Celiac's their bloodwork won't show it. SO we'll see. (Sidenote: Celiac's Disease is more common in kids with Down syndrome, so it wouldn't be a total shock if she ends up having it.)

Anyway, she is feeling good tonight and I think after a good night's sleep she will be ready for school tomorrow! Thanks to everyone who prayed for her. :)

4 comments :

Jo's Corner said...

Most blood test don't show Celiac. The true confirmation is the biopsy. Sadly, I found out the hard way, too! The Gastroenterologist said I've had it for over 30 years, by the looks of my intestines. I had NO vilia. Should look like shag carpet, mine were hard wood floors. Sating some prayers for your Sincess!

Lynn said...

This is one of my favorite passages. Praying that it gives you comfort as well and for good answers.
John 14:1-3 Let not your heart be troubled: ye believe in God, believe also in me. In my Father's house are many mansions: if it were not so, I would have told you. I go to prepare a place for you. And if I go and prepare a place for you, I will come again, and receive you unto myself; that where I am, there ye may be also.
My email address

Anne B. said...

Praying that Kennedy's headaches are nothing and that they stop completely. Also praying for answers to her tummy problems...a quick and simple fix!! You guys need a break!!! (((HUGS)))!!!

Shoeaddict said...

My very good with Celiac says that her blood work was negative, too, but she (and her mother and children) do have it.