Thursday, October 18, 2012

Test Results

I got Kennedy's test results back from her biopsies and CT scan she had done on Monday...

The CT was normal, which is good. That rules out anything scary. Now we just need to figure out why she's having these headaches! She woke up with another one the other night. They're not every day, but I would say she has one probably 3 times a week. It's frustrating for her because when they hit during the day, she can't do her normal activities. Hopefully her ped will have some other ideas on how to help her.

As for her biopsies from the endoscopy and colonoscopy, NO Celiac's disease. So that's good. However, they did say the entire length of her intestines were covered in white blood cells indicating food allergies of some sort. They want her to see an Allergist ASAP. They are getting the referral done today and I'm supposed to call on Monday and make an appointment... hopefully it won't take a year to get in! So, I guess the plan is to figure out what she's allergic to and then cut that out of her diet. Technically, even though she doesn't have Celiac's disease, she could still be allergic to wheat. She eats A LOT of pasta. And bread. And cereals. Sooo... we'll see what the allergy tests show, I guess. I'll update on her again when we have results.

OK that's all for tonight, it's late and I'm off to bed. The kids are off school tomorrow (they were off today too) for parent teacher conferences so we're going to hang out and maybe do something fun... we'll see! ;)

12 comments :

Lynn said...

Assuming you've tried journaling everything Kennedy eats, does, is exposed to, etc? There has to be something you might be able to pinpoint! Hope you can pin down what foods she's allergic to, too! She has to be miserable!
Praying right now!
Romans 8:15-18 For ye have not received the spirit of bondage again to fear; but ye have received the Spirit of adoption, whereby we cry, Abba, Father. The Spirit itself beareth witness with our spirit, that we are the children of God: And if children, then heirs; heirs of God, and joint-heirs with Christ; if so be that we suffer with him, that we may be also glorified together. For I reckon that the sufferings of this present time are not worthy to be compared with the glory which shall be revealed in us.
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Sherry said...

There's a good chance her headaches could be from those allergies as well. Food diary can be very helpful. Allergy testing is not always accurate but can show some things. For example, my daughter gets bad headaches from aspartame which is in Wrigleys gum, Singulair, and many sugar free or diet foods/drinks.

Sherry said...

There's a good chance her headaches could be from those allergies as well. Food diary can be very helpful. Allergy testing is not always accurate but can show some things. For example, my daughter gets bad headaches from aspartame which is in Wrigleys gum, Singulair, and many sugar free or diet foods/drinks.

Joy said...

That's great that its not celiac... Maybe whatever she's allergic to is also causing the headaches..

Notsopc said...

So very happy that she had some good news. Hopefully she won't be so allergic to lots of food. She's been through enough..
Time must be getting short.. Hope Frank is doing well... Prayers for him too..
Nancy

Holly Aytes said...

Yeah for the good news...boo for the unknown! When they tested Madison for allergies I said "I can handle anything but milk" and sure enough milk it was! That was the worst thing for her to be allergic too b/c her entire diet consisted of milk products...milk/milk products for breakfast, lunch, dinner and snacks! She has adjusted pretty good though she did lose weight in the beginning. We still let her have milk some. I mean it isn't fair to not have ice cream, chocolate milk, or pizza. And since it isn't a life threatening allergy just a GI issue we feel like it is ok to cheat every now and then. Hope you get in quickly!

JennaJennJenn said...

Maybe the headaches are related to whatever she's allergic to? I hope you get some answers quickly and she can get some relief! Nothing worse than your child not feeling well and you being helpless as to how to help them.

The Blitz said...

Definitely check into food allergies and even seasonal allergies. I had horrible headaches and migraines my whole childhood until doing allergy shots and getting on the right meds. Thinking positive thoughts for you guys.

Anne B. said...

Praying that you get an appointment very quickly and that allergy will be obvious when they test!! Thankful that there is nothing serious going on with the Sincess!! Hope you are having a fun day off!!! (((BIG HUGS)))!!!

Emaline said...

Sounds like they may be migranes. I started at exactly her age. However, I had a visual aura beforehand.

You might want to ask her if she sees, smells, feels or hears something before or during the headache.

Common smells are oranges, burnt toast, something "sweet". Also visual auras from "squiggly" lines to flashing lights to colors.

Nausea, feeling tight(like tight in the chest, tight in the arms or any other body part), or excited...

Just because she doesn't have any auras doesn't mean it's not a migrane though.

Many treatments that aren't drug related can help...including food triggers/allergies. Didn't know I was allergic to Kale until it set off a migrane. And, while much literature says that MSG isn't a trigger, I can eat something with MSG, and not know it until I have a major Migrane.

Julie said...

Please hear my heart when I say this. It is not said as a criticism at all. I raised a child with RAD and I would never ever do it again.

That said, sometimes when life is disrupted, it manifests in kiddos in physical ways. With her Daddy being deployed, and her sister being gone, she might be processing it through migraines.

Kelly said...

How long do these headaches last? Less than 2 hours? Are they concentrated over one part of her head?

I first started getting cluster headaches when I was 11 and CTs, MRIs, no journalling patterns etc. all was clear. Eventually, I was diagnosed with cluster headaches and was put on Topamax (there are other meds if this one doesn't work) as a long term preventative and was given Imitrex as a abortive when I got the headaches. Since being on the Topamax (7 years) I have only had 2 cluster periods.

If cluster headaches haven't been explored yet, it might be an avenue to explore.

I hope you find something that works for her!