I got Kennedy's test results back from her biopsies and CT scan she had done on Monday...
The CT was normal, which is good. That rules out anything scary. Now we just need to figure out why she's having these headaches! She woke up with another one the other night. They're not every day, but I would say she has one probably 3 times a week. It's frustrating for her because when they hit during the day, she can't do her normal activities. Hopefully her ped will have some other ideas on how to help her.
As for her biopsies from the endoscopy and colonoscopy, NO Celiac's disease. So that's good. However, they did say the entire length of her intestines were covered in white blood cells indicating food allergies of some sort. They want her to see an Allergist ASAP. They are getting the referral done today and I'm supposed to call on Monday and make an appointment... hopefully it won't take a year to get in! So, I guess the plan is to figure out what she's allergic to and then cut that out of her diet. Technically, even though she doesn't have Celiac's disease, she could still be allergic to wheat. She eats A LOT of pasta. And bread. And cereals. Sooo... we'll see what the allergy tests show, I guess. I'll update on her again when we have results.
OK that's all for tonight, it's late and I'm off to bed. The kids are off school tomorrow (they were off today too) for parent teacher conferences so we're going to hang out and maybe do something fun... we'll see! ;)