Saturday, July 26, 2014

Post-Op Update!

We are home and Kennedy is doing pretty well! She hasn't complained about her throat at all which is amazing! I had heard from a few parents that the lingual tonsil recovery was worse than the regular tonsils but that part has seemed to be super easy. I have her eating soft foods just in case - we don't want to agitate anything in there - but so far, so good. Her oxygen levels improved already during her night in the hospital so they are hopeful that this WILL help her apnea. I need to keep her on her oxygen at home until she can have her follow up sleep study in about 3 months. They want to make sure she's fully healed before they schedule it so they get accurate results.

Her ear has been another story. I didn't realize how extensive the work was going to be. They went in from behind her ear to fix it. They found that the hole was much bigger than they expected and had to patch about 70% of her eardrum so they're hoping it will take. We won't know if it was successful until her next hearing test in a few weeks. She has been in a lot of pain with her ear... the first night they had a huge bandage on it and that was really uncomfortable for her. It was a long night. Once they removed that, it was SO much better but she's still in pain with it and lets me know about every 15 minutes that her ear hurts. :( She's on around the clock pain meds still at this point but it's not really doing any good that I can tell. Hopefully time will help heal.

Here are a few pictures from the hospital...

In Pre-op waiting to go back... 

Post-op in a room, trying to eat. She HATED that thing on her ear. 

Friday morning - bandage off!! SO much better!

She still has small steri-strips behind her ear. One more battle scar. *sigh* 

Thanks for all the prayers!! The other kids were great and had fun with friends while I was gone. So thankful  they were able to step in and hang out with them. Now onto full recovery.... I'll post again when we get test results!!

Wednesday, July 23, 2014

Surgery Tomorrow

Kennedy's 31st surgery is tomorrow morning... They will be removing her lingual tonsils to hopefully help her severe sleep apnea, patching up her left ear drum to hopefully repair her hearing loss in that ear and doing a scope of her lungs to check for abnormalities. She will definitely be in the hospital overnight. When she had her regular tonsils removed she was in the hospital for 6 days so I'm praying for the best and preparing for... Not the best.

Please pray for everything to go well. This is the first time she will be intubated since her spine fusion surgery and that brings a certain amount of risk with it. The anesthesia department took a long time going over her records and are prepared for different types of intubation if necessary but it's still something we can be praying for tomorrow. Please be praying for her recovery. It was really rough last time and I've heard different views about the ease of this surgery. Please pray her blood sugar stays under control tomorrow and during recovery. She didn't have hypoglycemia issues when her other tonsils were removed so this brings a whole different level to the importance of her drinking after she wakes up.

Please pray the other kids are good while I'm gone! Keeghan likes to test his limits when I leave and with Frank out of town too (he's in Florida doing training), he may really push. Kennedy's doctor was insistent about the urgency of getting this done and so... We will get it done. I am thankful for friends who have offered to help with the other kids and friends who have listened to me panic (just a little) about tomorrow. It will be ok.  

I will update on Facebook and then here as well when I can.