Comments on Life With My Special Ks: Medical Update

I made it to the end and my head isn't spinnin...

2012-01-09T13:32:51.113-07:00

I made it to the end and my head isn't spinning! Hope the 24 hour EEG gives you some answers. Praying for your family.

Just wondering if they are considering celiac with...

2012-01-07T19:11:16.009-07:00

Just wondering if they are considering celiac with Kellsey. It can cause anemia.

Praying for all the test and for them to figure ou...

2012-01-07T12:10:29.360-07:00

Praying for all the test and for them to figure out her sleep....If you think she is having some sort of seizures, that could DEFINITELY explain her not sleeping. Praying! :)

I would like to recommend you take a look the Fein...

2012-01-07T10:54:28.241-07:00

I would like to recommend you take a look the Feingold program. It is basically an elimination program where artificial petroleum based ingredients are removed as well as some fruits/vegetables which may possibly be added back in later (but not the artificials) Ever since we've been following it, my son's sleep issues and asthma have went away. It has helped my daughter's anxiety and shortness of breath issues. It has been amazing how much we've learned about how foods, both artificial and some natural can cause our bodies to react in various way. You can read more about it at www.feingold.org if you haven't heard of it before. Best wishes.

This is going to sound strange, but one of my daug...

2012-01-07T09:52:58.236-07:00

This is going to sound strange, but one of my daughters had an iron issue no matter how much she was getting. doc finally decided it was an absorbtion issue and sent us to a dietian. she had me give her peanut butter and jelly sand. with apple juice for lunch three times a week and it worked! to this day (she's 29) every time her iron dips she does this for a month or so and back up it comes . . . weird but it works

Thanks for this post, it always is helpful for sim...

2012-01-07T08:48:21.608-07:00

Thanks for this post, it always is helpful for similar medical issues. Tommy hasn't been sleeping more than 4 hrs a night even with melatonin so I think ill head back to our pediatrician for a workup maybe with neuro. He had severe sleep apnea but after tonsils and adenoids out the study was good. I do know that anemia in my older son caused night restless leg syndrome and he would wake with night terrors or just sleep horribly. Iron helped but you need to take with orange juice for proper absorption. Keep up the awesome job you do, I wish I could comment more often but read frequently. God bless.

Glad that for the most part you are getting good a...

2012-01-06T20:25:11.573-07:00

Glad that for the most part you are getting good answers. Yeah for no cavities...Taylor has the same problem with no adult tooth under one of her baby teeth (so far she hasn't lost the baby tooth). She is going to be going for a consult for braces too..she is really hoping to get them in the next few months, we will see since she still has quite a few teeth to lose!

Great news for all! I am on Gabapentin (Neurotin) ...

2012-01-06T20:05:19.412-07:00

Great news for all! I am on Gabapentin (Neurotin) myself for my Fibromyalgia. It is similar to Lyrica, but has fewer side affects. I hope you find the right dosage to help her.
Beckie

You know, if Kellsey is having some seizures, that...

2012-01-06T20:01:32.863-07:00

You know, if Kellsey is having some seizures, that would definitely explain not sleeping well. Jax is sleeping horribly now, and he is having tons of seizures. He never sleeps when his seizures are bad. There are a bunch of other things to try for sleep, so don't hesitate to ask for something else if this doesn't work!